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iSpine Discuss One year Hell ADR in Germany (L4/5).Revision to fusion. in the Main forums forums; RIP Freedom of Speech...

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  #11 (permalink)  
Old 01-02-2008, 12:52 AM
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RIP Freedom of Speech
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Defamation lawsuit from surgeon for telling my story. All info forced to be removed. Might as well kick me into the body pit now.

Last edited by Job13; 03-28-2013 at 08:38 PM.
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Old 01-03-2008, 01:58 AM
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Dear Anastasia and Matt.... I'm glad to hear that you continue to make progress. It sounds like it's been tough, but still getting better and better. To me, seeing things like "able to sit through a 20 minute dinner" brings tears to my eyes... As little as that sounds, for someone who could not do that for so long... it's huge!

Keep it up... I hope to hear of more and more improvement. Sorry I missed you last month... maybe next time.

All the best,

Mark
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1997 MVA
2000 L4-5 Microdiscectomy/laminotomy
2001 L5-S1 Micro-d/lami
2002 L4-S1 Charite' ADR - SUCCESS!
2009 C3-C4, C5-C6-C7, T1-T2 ProDisc-C Nova
Summer 2009, more bad thoracic discs!
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Founder: www.iSpine.org
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Old 01-04-2008, 01:22 AM
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I really hope that you continue to improve and like many of us you know too well that patience is key. You have the disadvantage that due to your long down time you are out of fitness and need to train a lot harder then some of us. But it can be done, keep working on it and you will get just a teeny bit better every day.
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Old 05-12-2008, 05:07 PM
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RIP Freedom of Speech
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Defamation lawsuit from surgeon for telling my story. All info forced to be removed. Might as well kick me into the body pit now.

Last edited by Job13; 03-28-2013 at 08:35 PM.
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Old 05-12-2008, 06:12 PM
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I'm so sorry to hear about your devastating circumstance, you are very young you still have a life ahead of you to recover it may take many, many more months or years but you can do it one step at a time don't ever give up!
When your able, try water therapy it could help you.
Regards,
Myriam
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Old 05-12-2008, 06:15 PM
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Job13,

I'm sure everything you've said is very valid but not all share your experience. I found Dr. B great and Dr. Reagan uncaring and insensitive. Though I will have nerve problems for the rest of my life which I partially blame on Dr. Reagan, I'm grateful to Dr. B for giving me my life back.

I understand that you had much the reverse and I'm sorry you had to go through all you did but am glad that you're finally on the mend. Hopefully this path will lead you to pain free days and that you will have no further problems.

Dale
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Old 05-12-2008, 07:31 PM
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Thank you for sharing the continuation of your story. I am glad to hear you are on the road to recovery and I am 100% sure you will make steady improvement. Those stationary bikes are good exercise.

It seems you indicate Dr. Regan did your revision. If so this is very good news for those of us who think we need to go to the more experienced surgeons of Europe to have these treatments but it sounds like you got on an airplane to come to US to have this revision, a much more complicated procedure then a single level ADR? That flight must have been a torture trip! Are you now back in Europe or still in the US?
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Old 05-12-2008, 09:02 PM
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Dear Anastasia,

I am so very happy to read that you continue to improve. I have not revealed before that we met as I was afraid that doing so would reveal to others where your revision surgeon was located and thus possibly his identity. However, now that you are sharing more details, let me say that it was a great honor to meet you in person. Your story led me to ask all the right questions about my facets and helped me decide my surgical path. You are often in my thoughts and I wish you the very best.
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Old 05-13-2008, 04:50 AM
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Dear Anastasia and Matt,

I'm so glad to hear the Anastasia is improving and life is getting somewhat better. I understand the frustration that it will never be what it was, but for so many in such dire situations, any improvement is a godsend. I hope to hear the A's recovery continues and that the years to come bring something close to a normal life with normal activities.

I smiled when I read Dale's "Regan's a jerk... Bertagnoli was great" post. (my words, not hers.) It shows something that I discovered a long time ago... ALL of these guys have many patients who think they walk on water... and many patients who think they are evil incarnate. I've seen it many times... after failed surgery, there is often a falling out with the doctor.

Regarding your treatment on the other board.... you'll find that moderating an internet forum can be very touchy at times. There is a fine line that must be walked. We all hope that we can come to places like these and get useful information that will help us to make an informed decision about our treatment. I encourage failed patients to come and tell their story, so people can more certainly understand that spine surgery is still not an exact science. Even in the best of circumstances, we'll see a few disasters like yours. That is the risk we take when we consent to do surgery.

So please... continue to share your story here. I hope that the improving trend continues. While we've met in person a few times, I've only seen the 'in pain' Anastasia... I would love to get to know the relaxed, happy, vivacious Anastasia that Matt knows from years ago.

All the best,

Mark
__________________
1997 MVA
2000 L4-5 Microdiscectomy/laminotomy
2001 L5-S1 Micro-d/lami
2002 L4-S1 Charite' ADR - SUCCESS!
2009 C3-C4, C5-C6-C7, T1-T2 ProDisc-C Nova
Summer 2009, more bad thoracic discs!
Life After Surgery Website
President: Global Patient Network, Inc.
Founder: www.iSpine.org
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  #20 (permalink)  
Old 05-13-2008, 05:41 AM
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Hi Anastasia,
I'm so happy to read that you continue to improve even if it's a slow path to recovery.

I saw Dr.Regan as a consult and found him to be very nice. He wasn't getting an insurance reimbursement to see me and was much nicer than many a consultation I had that WC paid pretty decently for.

Anyway, just glad what he did worked for you. I've been down the road of great surgeon, horrific failed result and all the stuff that came afterwards even being told I was "doctor hopping" because I was looking for answers/help back then...

Glad to know that you found the surgeon that worked out best to do a revision for you and thank you for sharing an update here with us. Keeping it real. Thanks~ and continued wishes re healing
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