Welcome to the board, Paul. These sites have made a huge difference in my coping skills and finding information about ADR that isn't available elsewhere....first hand advice and experiences are priceless.
If I may offer a suggestion, it would be to get several opinions from doctors familiar with ADR. You can send many of them your MRIs and get a tentative diagnosis from them, at no cost. There are others that you have to pay, but I got my best advice from a surgeon in NYC, one of the best in the country, and it only cost me a consult fee after I went to see him in person. And even that was well worth it. I can give you a name if you like, if you just send me a PM.
Educate yourself as much as possible, by going to the PubMed site, which gives medical reports and studies. Some you might have to pay for, but I was able to gather an awful lot of information free of charge.
All the best.
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DDD
Herniated discs C4/5 & 5/6, L3/4, L4/5, L5/S1
Severe compression of spinal cord in two levels
All conventional therapy exhausted, including spinal injections, PT, massage, etc.
In appeal with Gov't Insurance for Out-of-country coverage for ADR hybrid surgery of above discs.
Recently discovered that I am severely allergic to all common metals used in surgical hardware except for Titanium.
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