I too have been in remission. I noticed last August that sometimes, I had missed my dose of Neurontin, sometimes by up to 4 hours. I then decided to try going off the drug altogether, so, in a six week period, I titrated myself off completely.
Like Maria, I do flare up, which is very much activity oriented, BUT, I seem to recover a lot more quickly than I ever did before.
It is Summer here in Australia and my nerve pain always was better in the Summer, so I'm holding my breath and hoping that I won't have to go back on it for Winter.
I haven't had a recent MRI, but I can only presume that the C6/7 nerve root is not being compressed anymore.
Unfortunately, I seem to be having more problems with my L5/S1 than I did before. Nothing too debilitating, just frustrating. The pain level doesn't even come near to what I experienced with my C6/7. I find that taking Neurofen plus seems to help with this.
It is odd the way pain ebbs and flows.
Hucky
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MVA April 2003 - Whiplash
C6/7, MRI shows large right paracentral disc protrusion with extension centrally. Mild compression of cervical cord and obscuring the neural foramen and exiting nerve root. No uncinate process hypertrophy no facet joint degeneration. no left neural foramina narrowing.
1200mg of Neurontin.
In the last 3 years have seen 1 gen surg, 2 neurosurg and 1 ortho surg. All rec fusion, only 1 recommends ADR or fusion.
Have been off Neurontin since Nov 2006
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