[jsewell]

My pulmonologist derailed any hope of having the nerve surgery. I had a message on my phone on monday saying that the neurosurgeon had spoken to my pulmonologist and they had decided surgery was not a good option. My pulm. has never been for even finding out if the nerve was damaged. He keeps going back and forth blaming other things which have been corrected. Like my severe kyphosis. He just keeps saying my problem is ventilation. No kidding, i can't get enough oxygen in and everything works fine. Except my diaphragm muscle and my phrenic nerve. He just won't accept that and told me the surgeon would do more harm than good.,
He is used to handling nerves so i don't know why he would say that. I cried all day monday and little bits yesterday and today. I spoke with both doctors on monday and was sill kind of in shock and did not ask the right questions .
Oh i was so looking forward to breathing normally again. And having energy. I am told i am so tired all the time because i use all my energy to breathe.
life goes on and i am lucky for that.
judy