[Griffen]

Once you know what is going on & learn to adapt it is nowhere near so worrying.There are good days & not so good days but you kind of get use to it.

My advice would be to make an appointment to see a private consultant. Then, if an MRI etc is needed, ask if you could have that as an NHS patient. If nothing else you may be seen & get a scan quicker.

If you go down that route write up a kind of "victim impact statement" making a list of all your symptoms,how it is affecting your life,treatments to date & any questions you have. Dress up smartly & take it with you so that you can make sure you don't forget anything.I found you get better results if you are fairly business like about the whole thing. Strange but true.