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Old 04-29-2015, 06:22 AM
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fuzzy fuzzy is offline
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Join Date: Jun 2007
Location: Northern CA
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Originally Posted by PepsiDoodles View Post
Could be Maria, not real sure, could be just old age lol, will leave it be then, an focus on the internal shingles am dealing with from hell ! Eye Dr upped antiviral and eye drops yesterday, helped heaps, and with the PHN pain, called and left a nice message for the Dr who lowered the antivirals, a Thanks, not have the little bastards in my eyes and head! Onto the many calls for the day! Fuzzy, not sure, you might go onto face book and look up syringomyelia and chiari research there is a page for it if your syrinx is rounder in 5 mm or if you have ch 1 there is a large study going on back east headed by the best Dr for your condition period, it is all paid for, all follow-up care paid for, travel you name it paid for, they also work with your home town dr's to guide in your continued care while at home, but you should check into it if ANYONE has mentioned that kind of a surgery overhaul to you with that kind of a sryinx involved! Best of wishes!
I was initially accepted in that study but they kicked me back out for too many complications even though the study was not restricted to exclude previous surgeries or other concurrent complications. I still believe the studies are too focused and exclude too many real world cases.
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