Thanks Rosedee & also for your PM, I may take you up on the offer of a call sometime soon, thank you
It was suggested I get a second opinion 2-3 months ago but I considered it too soon although it had crossed my mind. I did consider going to The London Spine Clinic but to be honest, getting to & across London for me is a nightmare. I then had a look at the list of UK surgeons & found the name of this Neurosurgeon in Leeds who specialises in the spine & also does ADR both cervical & lumber. I then found someone who'd seen him & gave a glowing report. As it's a lot closer to home, easier to get to (plus my partner only lives 35 mins from there) I've made the decision to go & see him.
If BUPA would pay or I had the money through from the house sale & divorce settlement, I would seriously consider going over to see Dr Baumbach as from what I've read he sounds wonderful! However for now I can't afford it as I'm on Disability.
I have previously seen a Professor of Neurology but to be honest he was a bit of a waste of time as other than various diagnosis' & a recommendation to see a Spine Surgeon, he didn't know what to do with me! I had a battery of tests including a totally bodged Lumber Puncture that put me in a wheelchair for several weeks, told me my back had had it but to see a Spine Surgeon, then he told me I had Benign RR/MS along with Fibro & some CFS!! It was then a "good-bye" unless you feel the need to see me again! Hence, as much as I've felt the need at times I've never returned!
I'm going to ask the Pain Specialist tomorrow about trying one of the nerve meds to see if that may help with the crawling & burning sensations, the painful numbness etc. I've not wanted to try these before because of not wanting to gain the weight but I don't think I can continue to live in this much pain for much longer.
Thanks again for your reply & hopefully chat soon