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iSpine Discuss Caring for a loved one in pain. The spouse of a chronic pain patient. in the Main forums forums; I received this email today: Dear Mark and Diane, It's taken me some time to find you. I just ... |
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Caring for a loved one in pain. The spouse of a chronic pain patient.
I received this email today:
Quote:
This is a very important topic and I now realize that I should have brought this to iSpine when I started it. I don't know why the topic was removed from the other forum. The thread was closed (without comment or explanation) so nobody could post to it... After it fell away from the front pages, it was deleted. I don't know why. If anyone learns the reason, please let me know. Here is a copy that I saved. Unfortunately, I do not have the subsequent pages with more replies... only the first one. There was also a thread on Braintalk with some wonderful replies. Unfortunately, about a year ago, all braintalk data was lost and has not been recovered. Fortunately, I was able to retrieve most of this thread from google cache. Not all of us are lucky enough to have a supportive spouse or partner to pull us through our ordeal. I feel for those who don't. Many spineys loose their relationships as the years of disability wear on, and layers of depression, anxiety, drug dependence, codependent issues, etc... complicate matters. My hope is that with some attention to caregiver issues, many of these relationships will be repaired. If you still have a supportive partner, make sure that you get to understand how severely their lives are impacted by your disability. Make sure that you do what you can to make the lives of those around you easier... Our lives revolve around our spine problems... their lives should not. In the years since the GPN International Spine Patient Symposium, reactions to this have been very powerful. When I send a link to chronic painers, they often believe that I'm sending something that will tell their spouse how bad things are for them. Really, I'm telling them how bad things might be for their spouse and family. I hope more people find this useful as Rick and Mary have. All the best, Mark
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1997 MVA 2000 L4-5 Microdiscectomy/laminotomy 2001 L5-S1 Micro-d/lami 2002 L4-S1 Charite' ADR - SUCCESS! 2009 C3-C4, C5-C6-C7, T1-T2 ProDisc-C Nova Summer 2009, more bad thoracic discs! Life After Surgery Website President: Global Patient Network, Inc. Founder: www.iSpine.org Last edited by mmglobal; 04-29-2007 at 02:10 PM. |
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