New Pain after fusion

[Maria]

Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.

[jsewell]

thanks for the info i will look into it all.
I do , believe it or not have an excellent endocrinologist. when i was doing research on cushings a few years back and still living in georgia, i flew out to so cal to see him. I have been on testosterone for years and my vitamin D levels are at the top of the range. Over the top at one point. I do a lot of hiking in the so cal sun. pain or no pain, breathing well or now not.
As far as my discs they are all taken care of. My lumbar pain is caused by a fracture in L2 and possibly the screws. My doc plans on taking them out and cementing the fracture when he feels i have recovered enough from my broken neck. that one was my biggest fracture and i don't even know how it occured , which is why i need to strengthen my bones. I have been a runner for years and years and stopped after my hip was replaced in 2008. So i have been doing all the right things that i can , just loosing the battle.

Thanks Maria not sure what you mentioned is, but i will check it out.
Any suggestions are always appreciated
judy

[Maria]

Hey Judy,
I was responding to what ADRseeker posted after checking out the link mentioned for Regenexx so the question was posted to this poster.

I stopped taking my injectable Forteo because it has such a plastic-y smell and I know that may have been stupid but it actually made me feel like vomiting just smelling it. My PCP told me to hold my nose or cover it with something pleasant smelling like Lavender. I still have to see my Rheumatologist and admit non compliance w/treatment and get BMD done. I only hope it has not gone lower.

I have seen what happened to my father with severe osteoporosis and do not want to go there. My mother, brother and father had/have it.


I do think that often the benefit(s) outweigh the risk(s) in medicine and on that premise we choose to proceed w/various treatments/endeavors.

[ADR seeker]

Originally Posted by jsewell

thanks for the info i will look into it all.
I do , believe it or not have an excellent endocrinologist. when i was doing research on cushings a few years back and still living in georgia, i flew out to so cal to see him. I have been on testosterone for years and my vitamin D levels are at the top of the range. Over the top at one point. I do a lot of hiking in the so cal sun. pain or no pain, breathing well or now not.
As far as my discs they are all taken care of. My lumbar pain is caused by a fracture in L2 and possibly the screws. My doc plans on taking them out and cementing the fracture when he feels i have recovered enough from my broken neck. that one was my biggest fracture and i don't even know how it occured , which is why i need to strengthen my bones. I have been a runner for years and years and stopped after my hip was replaced in 2008. So i have been doing all the right things that i can , just loosing the battle.

Thanks Maria not sure what you mentioned is, but i will check it out.
Any suggestions are always appreciated
judy

There are some clinical trials where they are mixing stem cells with BMPs (bone morphogenic proteins) but it is a product being tested for fusions.

It sounds genetic and it also sounds like you have good doctors.

Stem cells will help bone repair.

[jsewell]

ADR seeker we have taken over a thread and i feel bad about that. I need to concentrate on not getting any more fractures in the future first. THe ones i have are healing and the kyphoplasty is a simple procedure.

I did read up on regenexx, sounds interesting, but new and not proven .
judy

[ADR seeker]

Originally Posted by jsewell

ADR seeker we have taken over a thread and i feel bad about that. I need to concentrate on not getting any more fractures in the future first. THe ones i have are healing and the kyphoplasty is a simple procedure.

I did read up on regenexx, sounds interesting, but new and not proven .
judy

I need more proof too.

[Maria]

I like the idea of what Regenexx is proposing/doing. If it works then it sounds pretty great.

Seems like so many people are doing much better w fusions these days than what I have read on spine forums over the last 10 years or so.

I just always remember this when my last spine surgery in '92 failed so miserably and that's "better the devil you know than the devil you don't" ~ that is if one is getting along Ok and most of the time doesn't have much pain or aggravation/activity levels are acceptable and so forth. Since I no longer work that's the case w/me.

So many people are doing much better however with the help of wonderfully skilled surgeon and the right surgery for the right clinical situation however that I'm sure my logic is skewed/chickensh*t/ and so forth.

Today I'm having a weirdarse flareup of a prob that hasn't plagued me in a while. I don't expect it to last long and if it's going to be more than a day or two I'll consider getting an injection of 60mg Toradol IM to see if that alleviates the prob. Before I would have wanted an ESI which I can no longer get unless I pay for them.

So sitting is pretty much out for me today at least for now. Going to attempt my regular walk w/dog (hour) and see if that helps or ? Normally walking alleviates pain/stiffness for me though might increase muscle spasms if that's what's going on and I think that's the case.

[jsewell]

Maria
I am sorry to read of your flare up. No fun. I vacummed and washed the kitchen floor yesterday , not good. Well i wake up in pretty bad butt and hip area pain every day from my lumbar problems. The only area that is not fused!! At least all the way. L1 and L2 are fused, or fusing.
I hope you have a good doggy walk and are feeling better soon
judy

[ADR seeker]

Originally Posted by Maria

Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.

I am looking into Regenexx myself. It sounds good but I can't find any double blind studies only testimonials. I have read on other forums of people getting good results.

I have also read about athletes having similar procedures done with good results.

The regenexx procedure is different in that the use something in the patient's blood to grow the stem cells. Because this is not a new substance the FDA rules are iffy. The FDA is trying to call it a medication but Regenexx is calling what they do surgery. I would trust Regenexx before I would trust the FDA but Regennex could be a scam.

As far as I'm concerned the jury is still out. Stem cell therapy is not being treated rigorously because it is something that can't be patented and whether people want to admit or not American medicine is about money first and foremost. For every Dr Oz there are 50 Dr Greeds. The sad fact is bad medicine is more lucrative than good medicine.

Take a look at the current ADR available. These things are tinker toys. I really don't think the best mechanical engineers are designing these things. The one that makes the most sense to me is a Neo Disk. It doen't look as pretty as the M6 but if it functions as well from a motion point of view I would IMO say it is superior because if implanted properly is won't migrate and it's a much simpler procedure. It also, as far as I know contains no metal so there is less chance of toxicity or metal allergy other than the screws. But the screws don't rub against anything so they probably won't shed metal.