scar tissue really!!!

[mwolf2022]

Its been awhile since I posted.I have been consumed with trying to figure out what is causing my pain.

The Surgeon who performed my fusion has pretty much told me to move on , so I have , from him anyway.

The PM I see has performed two nerve blocks and one facet block so far with no relief at all.

Both doctors have told me that scar tissue is my issue.My mri does state that there is scar tissue surrounding the nerve root at L5-S1 , More right then midline.

My issue is I had a discecotmy in 2006.Never had this pain I have now , which is a burning pain real low , like in the tailbone , coccyx area.Along with intense burning in my buttocks and upper thigh.

I had a fusion in 2008 that was performed from the front.How could scar tissue be an issue when the surgery wasnt performed from a posterior approach , and also my pain didnt start untill 9 months post op.

I question how scar tissue could cause a problem when it was there two years before the 2nd surgery and I had no issue.

I did question the PM doctor about the possibility of piriformis and he looked at me like I was crazy.

I did some research and will be traveling to NYC this friday to see Dr.Fishman.He is supposed to be a specialists in sciatica and piriformis.

Wish me luck as I hope there is light at the end of the tunnel.

Mike

[Maria]

Mike,
Your symptoms sound much like what plagued me chronically post my failed L4percutaneous discectomy which a few months later showed scar tissue on the rt. S1 nerve root.Later I had bulging of L4 again and L5S1 tho the burning diffuse pain was blamed on "scar tissue." Both of my legs were involved too with that awful gnawing burning pain besides buttocks bilat and tailbone .. plus back pain worse than before the surgery.

I also had a regular big open discectomy on L5S1 several years earlier tho that was Ok post surgery. There was no evidence of scar tissue at the time.

Post the '92 surgery I took Elavil for 5 years for the neuropathic pain and then after that 12 years of Neurontin (stopped taking it last year and painful burning stuff stopped bothering me as much somewhere in the 2000's). I had a really good PT that worked w/failed back surgery patients starting in 2001 and he said I had piraformis syndrome as well as SI joint syndrome. Fortunately I was able to see him for a year and with his 3x/week, ESIs and medications I did have improvement. I was still researching the possibility of more surgery re low back pain from 2000-2005/6.

Between 2000 and 2006 I was offered 3 different kinds of surgery for L3-L5S1 (3 level fusion, 2 level ADR, and hybrid surgery at L4 and L5S1). I didn't have more surgery as I started to feel better not worse however I do take a low dose opioid medication every day.

Am interested to read what your next consult with yield so please keep us informed and sorry to read that you've got this type of pain and do hope it will resolve more quickly than what I experienced.

[mwolf2022]

Wow Maria your history sounds very similar to my experiences.I am going on almost three years with no relief.

I dont know how people go years with no help , it really wears me out.I will keep you posted on the outcome.

Mike

[dshobbies]

Pain exhausts you and robs you of your ability to fight on your own behalf. But it is also a excellent motivator. Whatever it takes, keep up that fight until you find your cure. There is a doctor out there for you... when... where... just keep trying. I wish you good luck,

Dale

[mwolf2022]

Originally Posted by dshobbies

Pain exhausts you and robs you of your ability to fight on your own behalf. But it is also a excellent motivator. Whatever it takes, keep up that fight until you find your cure. There is a doctor out there for you... when... where... just keep trying. I wish you good luck,

Dale

Thank's Dale , I look at my kids every day and they are the reason why I keep going.

I will keep plugging away and hopefully one day , I will find the one.

Mike

[mmglobal]

I think that some diagnoses are cop outs. Often, I believe that when we hear 'scar tissue' or fibromyalgia, we should be hearing, "I don't know".

I don't know, is not the same as scar tissue!

I'm sorry that you find yourself in this situation. I hope you find some relief. All the best,

Mark

[mwolf2022]

So I made the trip up to NYC to see Dr Fishman.He was very enthusiastic about his work and seemed to be generally concerned with my pain and how long I have been suffering with no diagnosis.

He did the usual evaluation , then he did a EMG , which came back positive for piriformis syndrome on both sides.My reflexes were really delayed on the results he showed me.

Dr.Fishman then gave me two injections , one on each side.Very little pain during the procedure except when he wasnt confident he was in the right muscle and had to move the needle around a little.

After the injections my pain went from a 7 to around a 2 instantly.He stated that he was very happy with the results and scheduled me for two months of PT.

He informed me to stay in touch with him and if I do not keep on improving he would like me to come back and try a botox injection in the muscle.

Finally after three years of going from doctor to doctor and not getting an answer I can finally throw myself into this rehab and hopefully one day have some of the life I used to know back.

[Maria]

Wow, I'm happy for you re that quick of relief! I wish someone could have lessened my pain that rapidly.. I think it lasted from '92/93-2001 because no one even listened to me back then except to say "scar tissue" and tell me that I was "doctor shopping/hunting." PTs were more accurate with their pinpointing pain but that didn't matter much back then.

I remember hearing about using botox for this as well right about when I got relief in this area.

Hopefully this will work and you can move on. Please do keep us informed and thank you for sharing the outcome of this visit!

[mwolf2022]

Maria , Nobody listened to me either.I pretty much did all this through research on this site and other forums , websites , etc .I wish I would of did some research prior to now and maybe I woudnt of suffered for so long.

[jsewell]

I am so glad to hear of such an improvement and so obvious and quick!!! that is just awesome and i wish the best for you
judy

[mwolf2022]

My pain has slowly started to come back.I feel aroud 20 percent better.Friday and Saturday were amazing.

Last night and now today I am starting to feel like I have for the past couple years.
I sent an email to the doctor , waiting for his response.