Neurotin Anyone?

Jim M2 · #1 (**permalink**) 08-27-2007, 02:14 AM

This med seems to be working for me. I'm really happy about it. After one month I'm still on a low dose of 900mg/day (3600mg/day is max).

Jim
L5S1 Charite, Aug-03

nurse4kids02 · #2 (**permalink**) 08-27-2007, 02:18 AM

neurontin didn't work for me... lyrica was the best. good luck to you and glad it is working!!

Maria · #3 (**permalink**) 08-27-2007, 02:56 AM

Jim,
I've been using Neurontin since 1998 and it's helped with my burning pain greatly. Been on stable dose of 1800mg/day. Have tried taking it down lower but symptoms recur so am just glad I get the relief I do with this dose.

Hope you continue to do well~ Maria

dshobbies · #4 (**permalink**) 08-27-2007, 03:57 AM

I had too many side effects on 3000mg of Neurontin a day and switched to Lyrica a several months ago. Did will at 300 mg daily but again the side effects interfered too much with daily life, specifically, my thought processes, concentration and eyesight.

My pm suggested acupuncture which I began about 2 months ago. I'm down to 200 mg daily and if I can, will reduce weekly until I'm off of it. I also reduced Celebrex to once daily instead of twice but time will tell. I'm skeptically hopeful.

Dale

fireyangel76 · #5 (**permalink**) 08-27-2007, 05:00 AM

I tried neuronton a few years ago. It worked on my pain radiating down the leg but made me very sick and dizzy. I now just do without but surgery has helped my leg pain.

Jim M2 · #6 (**permalink**) 08-28-2007, 06:00 AM

I have drowsiness for a couple hours if I take 600mg at once, otherwise I'm not having side effects at 900mg/day. It seems to take the edge off most of my pain generators.

A friend at work started on Lyrica. Unfortunately it does nothing for her.

Jim

Maria · #7 (**permalink**) 08-30-2007, 02:38 AM

edited as necessary

mmglobal · #8 (**permalink**) 08-30-2007, 02:38 PM

After the first few weeks of taking neurontin, I went back to my doctor and said, "it makes me stupid".

"No, it doesn't do that, I've not heard that before", he replied.

So I went to the braintalk forum and posted a question about Neuronton. I was inundated with replies like,

"I woke up and found my underwear in the refrigerator and didn't know how it got there."

We used to have a thread titled "Neurontinisms". I later adopted a pet name I learned from others.... MORONTIN.

A side-effect of getting better is that I haven't taken any Neurontin in 5 years. Now, when I do something stupid, I have to make up another excuse. "It's the pain... it's the meds" just doesn't work any more... it's just me!

Seriously, I took Neurontin for more than 2 years. It really helped with the leg pain. I did not like the brain fog, so I tried stopping it several times and learned how much it was really helping me. The side-effects were worth enduring for the benefits. I never took more than 1200mg/day. Not everyone experiences the brain fog. I've known people taking more than 4,000 mg/day without it.

When I took 1200, it was 300 am, 300 mid-day, 600 at night to help with sleep.

My understanding is that Topamax is magic for people who respond to it (25% per my PM at the time.) I tried it and had an allergic reaction... immediately went back to Neurontin. Now a lot of people are taking Lyrica... that was not available to me back then.

I'm glad that it's helping you. All our situations are so different and anything that helps can be an incredible benefit.

Talk to you soon...

Mark

Jim M2 · #9 (**permalink**) 09-03-2007, 02:51 AM

Hi Everyone,

Thanks for the info.

On Wednesday the doctor gave me a refillable prescription for 1800mg/day. He said to increase from 900mg to 1800mg in 300mg increments each week if I'm not having side effects. I'm going to move quicker than that. I'm not detecting brain fog but it's hard to tell when I'm just lounging around watching football. My performance at work during the upcoming week will be the best indicator of mental sharpness.

Jim

Maria · #10 (**permalink**) 09-08-2007, 02:49 AM

Hey Jim,
when I first bumped up to 2400mg I was dead sleepy and practically nonfunctional. I had to drop it down to 1800mg daily tho for a while I was still real tired and pretty spacey.

Just a head's up if you're going to need to be sharp for work. I think the tititration upwards is ideal to do if you're able and have the time~

continued good luck however you do this and hopefully you will get some excellent relief. Fortunately I have at this dosage~

Jim M2 · #11 (**permalink**) 09-17-2007, 04:49 AM

So I'm doing okay on 1800 mg/day. I saw the Pain Center docs last Wednesday and they're recommending to my family doc (who prescribes the meds) that I can ramp up to 2400.

Maria · #12 (**permalink**) 09-18-2007, 02:44 PM

Whatever works my friend..

Eddie G · #13 (**permalink**) 09-24-2007, 07:57 PM

I like Neurontin better than Lyrica. Neurontin fog is nothing compared to Oxycontin fog. I wish all I needed was Neurontin since it really doesn't mess me up...