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Surgical Outcomes and Blogs Discuss I'm done! in the Main forums forums; I honestly have to say I've tried to reach out on this site many times and regarding my last ...

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  #1 (permalink)  
Old 01-06-2010, 08:06 PM
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Join Date: Apr 2009
Posts: 138
Default I'm done!

I honestly have to say I've tried to reach out on this site many times and regarding my last fusion post, everyone looks but has nothing to say. I spent hours making lists to help people and posted the lists on this site....no one seems to care. I feel it important to say something because I think it's a shame that cliques are so present on a pain site.

Obviously this is only a handful of people I am talking about.

I am not the only person who is having trouble with this issue on this site so if you read this, maybe it's something to think about. Best of luck and hope others won't have to feel this way.
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Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus

Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.

Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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Old 01-06-2010, 08:45 PM
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Join Date: Oct 2009
Posts: 53
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Dr.

Sorry you are not getting the response your looking for. If I remember correctly from reading your post, you have a low back issue from your surgery. Myself I did not comment because I have no experience with low back issues, solutions, etc.. All my problems have been Cervical.

But I do understand frustration when you looking for input and you get none. Pain is difficult to live with and trying and searching for answers is very frustrating.

I was unable to find your recent post about your condition, you may have deleted it. However if you repost I will gladly give you my best opinion or anything I can offer.

Hang in there things will get better.
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Old 01-07-2010, 01:18 PM
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Join Date: Sep 2006
Posts: 2,405
Default I'm sorry

I don't know if I'm one of the people you're talking about and I hope not tho I've been very absorbed here in parental care as I left CA on Nov19th to spend the holidays with my 88 y.o. father who lives alone in Fla. and shouldn't and on Christmas night he fell in the bathroom as he was having acute stomach pain.

Ends up he has something called a Volvulus or a part of the intestine that flipped on itself and was strangulating so Dec. 27th a.m. he had emergency surgery to fix this and he's been hospitalized ever since.

I've been at the hospital at least 6 hours/day and I'm an old time spiney who after 2 discectomies with last one failing miserably has avoided more recommended surgery so I'm just hanging in there by the skin of my teeth so to speak emotionally and physically much of the time.

So if I've only replied to a few persons it's basically been because I thought I had something to contribute there but maybe nowhere else.

And I've known Mark for awhile now (since around 2000?/followed his pre-op lumbar discs ADR posting at Braintalk back in 1998) so I may follow his posts regularly to see how he's doing tho I think I try to contribute to as many as I feel I can ...

Again I'm sorry you are feeling this way and hope you will reconsider as there are people here that would miss your contributions and I know even if I've not posted a reply I've definately read your posts and have appreciated them.

BTW I have a whole host of my own issues that I'm so involved with so again my apologies if I've been one of the ones that has neglected your posts.. I certainly haven't meant to.

take care ~ Maria

Last edited by Maria; 01-07-2010 at 01:21 PM.
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Old 01-07-2010, 04:58 PM
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Join Date: Apr 2009
Posts: 138
Default Maria

You are always there for everyone and I am so sorry for what you are going through! You are always there for everyone and so is Mark! Both of you are always responding and giving. Again, I am so sorry for what you are through.
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Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus

Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.

Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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Old 01-07-2010, 06:01 PM
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Join Date: Oct 2006
Location: Los Angeles
Posts: 1,596
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I am indeed sorry you aren't getting the feedback you both need and want. Currently recovering from surgery myself and having a boat load of year end work, I promised myself I'd stay away from the forum and other things to spend less time in front of the computer. Everyone has something in their lives that interfere with their best intentions. Often, especially men, people simply don't know how to share or don't know what to say (write). They sympathize or empathize and/or have no personal experience in your specific plight.

We're not a clique. Some of us have stuck around for no other reason than to offer support and ideas to others. We're all just a bunch of people hoping to improve our own lives and perhaps those of others. And more often than not, those whose lives do improve, tend to move on to their new lives and stop visiting these forums altogether. Our numbers are small but we do care.

Take care and I hope you continue to improve but please allow for the time it might take.

Dale
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3 level Prodisc adr S1-L3, Oct 12, 2005
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Severe nerve damage in left leg, still working on it
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Old 01-07-2010, 07:32 PM
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Join Date: Jun 2007
Location: Northern CA
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I too can't always come and it was to late your post was deleted. I tend to post when I can actually contribute and hoping in particular those that may have something similar that I have gone through and I can possibly help them because of my experience. Not commenting on every post does not mean I am in any "clique" at all but rather that I can not contribute something useful. I really do hope you reinstate your post so I can see whether I can help you in a meaningful way.
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Nov 07: STALIF Fusion L5/S1 ACTIV-L ADR L4/L5
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