Osteoporosis Advice

[ans]

Thank you very much for helping me!

I remember now the bone stuff from physiology.

Spotty from another forum told me that the bone being built isn't as dense as normal bone - but as M points out, we have various bone types.

I"m going for a hip MRI pretty soon and also for my spine as the pain's getting worse, day by day.

So, can you think for me and tell me what to do? I"m not kidding!

Yeah, so the hematologist/oncologist wanted to give me a yearly infusion of Reclast. Spotty is also concerned that these drugs last for 20 years (in the bone marrow?) and we don't know much about their safety. Maybe this is regarding an infusion versus more regular doses.

Is it true that Forteo is in generic b/c I was told that it's very expensive.

Again, I appreciate this as this is a new world.

(I wonder if I was born intersexed b/c of this).

Barbara, so you are interpreting the standard deviations and putting them in light of T-scores? I'll have to ask you sometime how this is done.

Gratefully, Allan

[sahuaro]

Allan:
Osteoporosis is defined as T scores below -2.5. T scores compare your bone density to women in their 30's (yes, women); Z scores compare to women in your age range. I don't know if the interpretation of scores is adjusted for males, e.g., if, as a male, a T score of -2.5 would be interpreted as worse than the same score for a woman. Obviously, in many ways, this is a crude measure and docs don't figure in the standard error of measurement and other variables.
Since you have had previous tests, the question would be whether the change in your scores are within the standard error of measurement or beyond, i.e., is the change significant? (I don't remember the SE but I did find it online a while ago)

[Maria]

Osteoporosis and bone physiology

Allan~ I found some very interesting information on this website

[ans]

Thank you very much oh highly-educated Nurse Maazz (who could have become an MD if you chose).

I"m a weak male. Tell me what to do.

Maybe when I catch up on school, etc. I can actually think for myself.

I appreciate everyone's input.

[sahuaro]

Once again, thank you so much, Maria, for posting this site. Lots (tons) of info here which reminded me of my struggle when initially diagnosed with osteopenia, with whether I should take the biophosphanates my docs were pushing on me--according to Ott, I probably shouldn't be taking them. The only reason I began to take them was my fear that I would be turned down for ADR.
I had read an earlier paper by her regarding interpretation of DEXA with women of short stature (in that paper, she did not specify under 5 feet) and presented this as an argument against the diagnosis to my PCP; he actually consulted at the medical school here and they rejected her argument...which doesn't mean anything about the validity of her data, just that I lost my appeal to my PCP.

Anyway, what's most relevant and concerning for me now is the caveat about stopping the med after 5 years...Another discussion to have with my PCP, gynecologist, and perhaps surgeon who implanted the ADR?

[ans]

OK. Any advice? I hear that there's some genetic bone-building meds. but I am not sure what. One doctor suggested, as mentioned, a yearly infusion of Reclast but I think this doesn't grow bone.

I have GERD so this might be a treatment consideration.

I also have heard that Forteo is in generic but others say no. I"m thinking of the injections into the fat pads every day or something like that.

Very disconcerting Bayla the long-term ramifications of these drugs and what they really might do. Also, from here? I read that the bone quality may not be the best as I am contemplating fusion which is insane due to my extensive DDD.

Be well people.

[Maria]

Get a few more opinions tho I think if you don't have lumbar osteoporosis or even osteopenia you might want to go with the Reclast. You probably aren't going to experience a hip fracture for another 25 years or so...

Or what do I know(really)..just throwing my 2 cents out there. There are others far more qualified than me to give such opinions such as MDs specializing in osteoporosis. I see a Rheumatologist that specializes in treatment for osteoporosis and prescribes the Forteo for me. If it weren't covered by the insurance and I couldn't qualify some other way~ I'd have to forego this treatment as well at current cost.

I was offered fusion and ADR while my lumbar bone density was still within the range of osteopenia vs. osteoporosis. No one was concerned with my hip values (just my GP). Now whether that's the most prudent medicine but ask the spine specialists you've seen and/or are going to see or contemplate surgery with.