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iSpine Discuss Let's get our loved ones involved here in the Main forums forums; My problem is, my significant other doesn't want to post on forums. I did tell him I thought he ...

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Old 05-07-2009, 04:22 PM
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My problem is, my significant other doesn't want to post on forums. I did tell him I thought he should read some of the post-op stories, to know what we might expect. Though, I've not followed through on that, and sent him links to patient stories. I guess I should get on that. I don't know if he will actually read them though.
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Cathy

46 years old. 12-15 years of intermittent pain, 2 years with constant pain.

DDD, L4-5 and L5-S1, pain confirmed by discogram.
PT, ESI's, Facet injection and block, Acupuncture - all no help.

2-level (Prodisc-L) ADR surgery with Dr. Bertagnoli, May 26, 2009.

Currently taking Opana-ER (tapering off) and oxycodone
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Old 05-07-2009, 06:01 PM
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My husband and I were just discussing supporting each other the other day, so I should get him to sign up here also. It would probably be beneficial to us both. he could come on here and vent about me at the same time I'm venting so he doesn't have to hear me complain all the time.
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Old 05-07-2009, 06:27 PM
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Jess,

While our caregivers would get a better understanding of what we were/are going through by reading the posts of other spineys, this forum is not their lifeline like it is/was ours. Prior to my surgery and during my recoup, this and other forums were my only connection to the outside world. My husband, family and friends, as sympathetic to my situation as they could be, still had their lives intact. Spending hours with the computer in my lap was my world and though we might have discussed an impactful post, my husband wasn't all that interested. I didn't push it. He had enough on his plate.

People have different interests. Individual circumstances influence these on a very personal basis. My husband and I support each other but we don't share the same interests. We patiently listen as the other rambles but beyond that support, we've got our own 'stuff'. If this is something your husband and daughter want to do, great. If not, I wouldn't push it.
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3 level Prodisc adr S1-L3, Oct 12, 2005
Dr. B in Bogen, Germany
Severe nerve damage in left leg, still working on it
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Old 05-07-2009, 07:53 PM
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Jess, I think this is a good topic. I recently wrote to my step father and brother and asked for help...any help. Anything they could offer even if it was just a talk.

For me it's really hard to ask for help. I don't know if that comes from being a caretaker myself, being a woman or just my personality.

I got a note from my step father who can be super intense and not always the nicest person (I love him dearly). I was surprised to hear him say if I didn't go to him for support he would be sad and upset. That was very comforting to me.

Having others understand my situation has been up and down and across the board. Some people are really empathetic and others do not have the capacity. Others just walk away. I take everything I can get and also try really hard to be there for their problem even tho they may seem slight in relation to mine, they need help too I realized.

I am single so I talk to my dog a lot. She has been very supportive and understanding. It sounds funny but we have to do what we have to do to get support...even if that means talking to a stranger. I have friends that I've had to accept are just limited. Then there are people I just can't be around anymore like the people who think the answer to my problems is getting out and bowling.
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Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus

Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.

Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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