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iSpine Discuss Now what do I do? Someone slap me PLEASE! in the Main forums forums; Wow, KC, I'm so sorry that things have gotten so bad. I hope that you'll find some relief ...

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Old 03-30-2009, 03:36 AM
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Wow, KC, I'm so sorry that things have gotten so bad. I hope that you'll find some relief soon. I've had clients who have gotten AMAZING support from their schools. Not only relief from the stress with being able to take finals late and other acommodations, but also counseling that was very helpful too.

I can't say anything that hasn't already been said by others here. I just want to say thank to kc for coming and sharing your story that will help many others. Also, thanks for allowing us the privilege of being able to provide some support and understanding. Thanks to the community for doing what you do... you rock!

Mark
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1997 MVA
2000 L4-5 Microdiscectomy/laminotomy
2001 L5-S1 Micro-d/lami
2002 L4-S1 Charite' ADR - SUCCESS!
2009 C3-C4, C5-C6-C7, T1-T2 ProDisc-C Nova
Summer 2009, more bad thoracic discs!
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President: Global Patient Network, Inc.
Founder: www.iSpine.org
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Old 03-30-2009, 12:05 PM
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Quote:
Originally Posted by mmglobal View Post
Wow, KC, I'm so sorry that things have gotten so bad. I hope that you'll find some relief soon. I've had clients who have gotten AMAZING support from their schools. Not only relief from the stress with being able to take finals late and other acommodations, but also counseling that was very helpful too.

I can't say anything that hasn't already been said by others here. I just want to say thank to kc for coming and sharing your story that will help many others. Also, thanks for allowing us the privilege of being able to provide some support and understanding. Thanks to the community for doing what you do... you rock!

Mark
Mark, brings up a very good point. My school has been extremely supportive about my current spine issues. I would look into special accommodations for examinations as well as any other school related support you may need. Your university should have a Disability Services office (I've personally had a very good experience with Disability Services at my school).

Congrats on finishing the assignments with time to spare! What courses are you taking by the way?...just curious. Your chair and narcotics will be a distant memory soon. Keep up the good work, lawyer.
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-Justin
1994 Football Injury
1997 Snow Skiing Injury
Laminotomy L4/L5 (3.7.97--17 years old)
1999 & 2003 MVA (not at fault both times)
Grade V Tears L4/L5 & L5/L6
2-Level ProDisc® L4/L5 & L5/L6* *lumbosacral transitional vertebra (11.15.03--23 years old)
Dr. Rudolf Bertagnoli -- dr-bertagnoli.com
Pain-free for the last 4.5 yrs.
5.14.09 DSS with Dr. B.
I'm here to help. Only checking PMs currently.
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Old 03-30-2009, 03:28 PM
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Justin brings up an extremely valid issue, your school has an obligation to take care of you, to an extent. They are interested in your success, as you reflect back to them, the quality of education they provided and, that you participated in. They have assistance programs to help you succeed and it sounds like you have to become more assertive. I am ex-military so, when I went to college no one messed with me as, I did not allow it. I had spent three years in the service before my college years. If a professor started giving me some trouble I let them know, under no uncertain terms, that I was paying for their salary. Please do not give up as the goal line is almost there. Continue to call them until someone responds to your concerns.

You sound like an amazing person with a huge future ahead of you. We will support you in this process.

Terry Newton
__________________
1980 ruptured L4-L5
1988 ruptured SI-L5
1990 ruptured C5-C6
1994 ruptured C6-C7
1995 Hemi-Laminectomy C5-C6, C6-C7 Mayo Clinic
Bicycle Accident 2004
MRI, EMG, Facet Injections, Epidural Blocks, Lumbar Discogram.
Stenum Hospital Surgery November 4, 2006
Prestige Disc C5-C6, C6-C7
Maverick Disc S1-L5, L4-L5
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Old 03-30-2009, 06:54 PM
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When I was having so many problems with my prodiscs I knew after many consultations that I really did not want to fuse over them. Half (2) of the doctors wanted to do that and half (2) wanted to remove them and then fuse. They felt that taking them out would give me a better chance of healing. The other surgeons felt that trying to take them out would be life threatening and did not want to try. I knew the surgery was risky but I trusted my surgeon even though he did not have quantity in his favor. I had already gone to the quantity surgeon twice with bad results. I know most others would not have done what I did and I hope that I did the right thing. Now at almost 7 weeks post fusion and can do more with less pain than the past two years. I am early in the process but feel good and my back hardly hurts unless I am on my feet standing still for hours. I still have some leg pain but not as severe as before. I have been able to sit in the car for an hour and just went away for the weekend for the first time in ages.

I hope that you are able to travel to see someone who can help you. It is not right that you are spending your life in bed and in so much pain. If you have a non-union fusion perhaps you can still take the discs out??? I hope that you can get some answers.
Phylly
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Cervical fusion C4-6 March 2002
Fall on tailbone causing sciatica and back pain April 05
Conservative Treatment and PM for 2 years
Discogram concordant pain @L4-S1 Aug. 07
Prodisc ADR's at L4-S1 November 2007
Foraminotomy July 08 for Sciatica
Continued problems and back pain worsened
Prodiscs removed and discs fused at L4-S1 Feb. 09
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Old 03-30-2009, 09:22 PM
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Default Thanks Again

I did try to contact the school again. This time I sent an email to the ADA person. I have heard NOTHING! Nothing from the school, nothing from the doctors, NOTHING!

I am willing to travel, but unfortunately I do not have any way to come up with the needed funds for Dr. B (never can spell or say his name!) in Germany. I am now on Medicare and Medicaid, but that is about it. Missouri now makes you pay for Medicaid! My spenddown was just raised to $108 per month. Apparently my $904 a month is too much money! But I guess the good news is I just got a letter that my food stamps are being increased to $14 per month! WHOOP EEE! I have one credit card left that I can use for this, but there is not enough to pay Dr. B

The Lyrica has helped the pain, but combined with everything else I am really drowsy and loopy. My vision is blurry too. I was trying to read my assignments in the text but it is just a blur.

Oh, forgot to mention. The staff at the school have never met me. I am an online student. The campus is approximately 90 miles from here.

Phylly, I am so glad to hear that you are doing well. That is FANTASTIC! I am sincerely happy for you! I was looking at Dr. B's website last night. Just makes me want to cry that I don't have a rich uncle or something that would give me the money to go to him and let him fix my back, without loosing the motion in my back. He offers so many solutions that are not available here...

I have been trying all day to work on my school work, and I have not managed to complete on single thing!

Well, I hope this makes scene, I am kind of out of it today.

Thank you all again for your support. It is appreciated.
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Old 03-31-2009, 01:24 AM
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I'm glad the Lyrica is helping for you. I found it to be a wonder drug and was on it for almost a year and a half and got up to 400 mg per day. It helped a great deal. The fact that you are an online student should not matter. You are still paying hard earned money that they are accepting to provide you with an education. I would keep calling up the ranks until you get someone to speak to you. Please keep us informed.

Terry Newton
__________________
1980 ruptured L4-L5
1988 ruptured SI-L5
1990 ruptured C5-C6
1994 ruptured C6-C7
1995 Hemi-Laminectomy C5-C6, C6-C7 Mayo Clinic
Bicycle Accident 2004
MRI, EMG, Facet Injections, Epidural Blocks, Lumbar Discogram.
Stenum Hospital Surgery November 4, 2006
Prestige Disc C5-C6, C6-C7
Maverick Disc S1-L5, L4-L5
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Old 04-01-2009, 12:51 AM
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Default I know pain too

Hey I know pain too...and think that you need to try to make yourself go get some face time with the school. I know pain myself right now - I literally am almost at a scream pain all day (chef). I have lyrica too. It makes me a little tired so I am taking 150mg at night along with some other meds. But you need to get face to face - docs are hard to get in touch with but harass them. Get on a first name basis with the "other end" of the phone. My wife is a FNP and runs a private group pracitice so she says it takes a day sometimes to get feedback - BUT as bad as you are - you need to do something - I am - and let me tell you it is tough emotionally - my brain is tired of hurting all of the time - this site is wonderful for people just like you...good luck
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Old 04-02-2009, 10:02 PM
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Default Good News!!

Just wanted to post an update.

I think I remember that someone asked me if it was possible to go to the school in person. Well, no not really. It is approximately 100 miles one way and by the time I got there and went through the go here, go there, go somewhere else, I would be in so much pain that I wouldn't be able to present my case and would still have to drive the 100 miles home.

HOWEVER, I have been presenting my case via email and facsimile up the chain all week. I don't remember if I posted that I had requested a waiver of the institutional requirement that would allow me to drop the two elective courses that stand between me and graduation. With much persistence, presenting my request all the way to the Executive Dean of Academic Affairs... (drum roll please) my waiver was approved!!

I feel like half of the weight has been taken off of my shoulders! This means that I have completed my Bachelors Degree! The disadvantage is that I will not get the Suma Cum Laude recognition (just short of the institutional credit hours requirement), but I have completed my undergraduate studies with a 4.0 GPA - 132.2 semester credit hours!

Now I can truly focus on my health and getting my back fixed so that I can continue with my goal of obtaining my Doctorate in Law. It seems like it has been a long time since I have had good new to share so I thought I would pass it along.
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Old 04-02-2009, 10:04 PM
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Congratulations!! That is indeed good news. Thanks for sharing it with us.
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Cathy

46 years old. 12-15 years of intermittent pain, 2 years with constant pain.

DDD, L4-5 and L5-S1, pain confirmed by discogram.
PT, ESI's, Facet injection and block, Acupuncture - all no help.

2-level (Prodisc-L) ADR surgery with Dr. Bertagnoli, May 26, 2009.

Currently taking Opana-ER (tapering off) and oxycodone
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Old 04-02-2009, 10:08 PM
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Accomplishing anything while in great pain is difficult enough but graduating with a 4.0 is a magical feat. Much congrats. You've earned it and deserve it.

You have a lot to be proud of. Dale
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Severe nerve damage in left leg, still working on it
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Old 04-02-2009, 11:57 PM
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Awesome news on the waiver! That is summa cum laude in my book!

Undergrad: Check
Doctorate in Law: In-progress

Now, you get to focus on your health--what a relief. Well done.
__________________
-Justin
1994 Football Injury
1997 Snow Skiing Injury
Laminotomy L4/L5 (3.7.97--17 years old)
1999 & 2003 MVA (not at fault both times)
Grade V Tears L4/L5 & L5/L6
2-Level ProDisc® L4/L5 & L5/L6* *lumbosacral transitional vertebra (11.15.03--23 years old)
Dr. Rudolf Bertagnoli -- dr-bertagnoli.com
Pain-free for the last 4.5 yrs.
5.14.09 DSS with Dr. B.
I'm here to help. Only checking PMs currently.
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Old 04-03-2009, 12:05 AM
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Congratulations!
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34 years old-
1/06- In wreck with 18 wheeler
Numerous MRI's, PT, chiropractic, accupuncture, TENS therapy, massage therapy, facet injections, epidural injections, Nerve study, Discogram, confirms pain in L4/5, IDET, decompression, Bi-lateral neurotomy L3/4/5, denied by insurance twice, in Active L clinical trial, had surgery March 17, 2009 in Miami, FL- received Active L disc
Had Baby #3 after ADR!
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Old 04-03-2009, 12:44 AM
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Great news. I told you that you needed to be persistent as that is what gets the answers. I can only hope that you can get the much needed treatment to get your spinal situation taken care of to continue pursuing the rest of your goals. Hang in there. I am really happy for you and, congratulations.

Terry Newton
__________________
1980 ruptured L4-L5
1988 ruptured SI-L5
1990 ruptured C5-C6
1994 ruptured C6-C7
1995 Hemi-Laminectomy C5-C6, C6-C7 Mayo Clinic
Bicycle Accident 2004
MRI, EMG, Facet Injections, Epidural Blocks, Lumbar Discogram.
Stenum Hospital Surgery November 4, 2006
Prestige Disc C5-C6, C6-C7
Maverick Disc S1-L5, L4-L5
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