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iSpine Discuss I really need help in the Main forums forums; I would never bring an MRI report or tell a surgeon what another surgeon said. I am paying for their ...

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Old 10-21-2009, 03:19 PM
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I would never bring an MRI report or tell a surgeon what another surgeon said. I am paying for their opinion not some radiologist or another surgeon. My MRI's, catskans, myelograms did not indicate clear nerve compression but once I had the nerve decompression the pain was gone.
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2/06 L4/5, L5/S1 ADR Stenum Hospital - Iliac vein cut w/ occlusion of iliac vein and hematoma
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Old 10-21-2009, 05:31 PM
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I understand your pain and feelings of hopelessness. What comes to mind is my incessant phrase "it's not fair" as I saw all around me going through their days and complaining about everyday happenstances.

Is there any chance you can find your way to Germany for a consult with the infamous Dr. Baumbach. From reading other posts, his diagnostic skills are second to none, and that's exactly what you need. I understand his examinations are beyond thorough so I think they must be done in person as opposed to online or via telephones.

I realize I recommend this as if you were made of money and especially in this economy it's probably not all that doable but... your difficult situation leaves few options.

Getting all your ducks in a row is a good idea for everyone but using your pain instead of your brain as a decision maker, not so much. Your pain is not capable of rational thought. . . .

You are in my thoughts, Dale
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Old 10-21-2009, 05:41 PM
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What you're saying, was there over 15 years ago but am in agreement w/Dale re using brain not pain to make the decison you might. Of course when pain overrides brain it's extremely difficult to do this but try real hard to hang in there for the chance that things have the possibility to improve~ still, someway, somehow even if thru more pharmacology or other type of non surgical tx or surgical tx.

Pain is horrendous taskmaster. I recall that only too well, esp. 24/7.
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Old 10-21-2009, 06:22 PM
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The problem is that I do not feel hopeless. I'm not sad and I don't feel despair. I know that that I can be helped but the pain is so severe that I don't know if I can hold on long enough to find it. I cannot rest my head on anything without causing excruciating pain. I can't drink out of a glass because extending my head back causes excruciating pain. I can't yawn because triceps and chest lock up when I do. On the exhale of every breath when my shoulders relax just a bit I get a shock down my left arm. I can't not breath.

There have been 3 times in the last two years that "something" has released and my entire body relaxed. My shoulders dropped, my neck released, and all of the muscles that were spasmed released. You could visually see all over my body. I have never felt anything better. It only lasted until I moved my head.

Steve, I completely agree with you but I have searched for that very doctor for two years now. I don't have the money to do it anymore. If you know where he/she is let me know.
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Old 10-21-2009, 07:00 PM
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Don't give up. There are some really good doctors out there and I wholeheardely agree with the comment above about Dr. Baumbach. This neurologist is a specialist in spinal nerve problems and so right away diagnosed my problems that were missed and continued to be missed by stateside Dr.s for years. Everything this man has said and predicted about my condition in the last 2 years has been spot on. His opinion would be so valuable but he is in Germany. But there are good ones here in uS as well. Continue to look for answers, there is an answer to your problems.
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Old 10-21-2009, 10:22 PM
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This is most likely something you've tried already but how about an injection of Toradol 60mg IM. I know even if this works it would be a very short lived type of relief for you but just thinking it might help.

I don't remember that much about my pysch nursing but perhaps you are feeling *detachment* in terms of your pain and your mental status. I think this evolves out of a pretty intense depression if I recall correctly and who wouldn't be with the level of pain that you're describing and situation.

$$ ~ understand that. I wonder if one of the good docs would see you and treat you under charitable circumstances? There are surgeons that do this in the LA area altho I don't know exactly how one qualifies for this and it sounds like you are short on endurance/strength because of the degree of pain you're experiencing. Again, I understand this as I've been so bad that there was nothing I could do but lie on the floor and movement was excrutiating in my lower body. Even going to the bathroom was an event of epic proportions. And the pain dragged on and on...

While I understand where you're at or imagine that I do I am hoping there will be some type of answer for you that would be beneficial and viable.

Last edited by Maria; 10-21-2009 at 10:25 PM.
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Old 10-22-2009, 02:27 AM
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Quote:
Originally Posted by jchebert1979 View Post

Steve, I completely agree with you but I have searched for that very doctor for two years now. I don't have the money to do it anymore. If you know where he/she is let me know.

Dr. Bertagnoli

And yes, perhaps Dr Baumbach would be even better at diagnosing you. Maybe you could see both. But if you cannot afford them (they would be out of any insurance network you may have), then you can still find good docs in the US also. Ask Mark, (MM global) if he may know of someone reputable in your area. If you have to stay in your network, then you may need to move on to a different doc and keep trying. I would hope you have family members who can chip in to get you to germany to see Dr Baumbach at least for a correct diagnosis.Seems you are in desperate situation and it would be too bad if family couldnt help out financially in this kind of serious situation.
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9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op.

9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.
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Old 10-24-2009, 02:34 AM
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this report refers to use of traction to reduce cervical intervertebral pain. u would need to google the title to find pdf

"Annular tear of a cervical intervertebral disc
treated with spinal manipulation and
intermittent axial traction: a case report"
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Old 10-24-2009, 03:00 AM
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this is info from a doctor with Phd, on neck injury and rehabilitation.
http://www.cfpsa-borden.ca/cfpsa/Nat...ies%5B1%5D.pdf
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Old 10-24-2009, 04:18 AM
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Default sorry to hear that...

very sad... I FEEL THE SAME WAY...
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C5-6: Disc desiccation with mild height loss.Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis- Severe neuroforaminal stenosis bilaterally, right greater than left.
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