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Surgical Outcomes and Blogs Discuss New Pain after fusion in the Main forums forums; Happy to say day three of prednisone working, but there are so many side effects. Very hard to sleep on ...

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Old 04-18-2011, 08:05 PM
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Question Prednisone

Happy to say day three of prednisone working, but there are so many side effects. Very hard to sleep on it. Feeling phantom pain also which is weird. Im took a walk yesterday and did some light house work. House work is my biggest issue but I hope in a week to be better?
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Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus

Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.

Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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Old 04-26-2011, 09:44 PM
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Fusions are rarely a good thing. The should have been done away with 50 years ago. Sadly medicine is a for profit thing and ADRs simply work too well although they are not perfect.

Ask yourself what disease has medical science cure in the past 50 years.

A great solution is the Neo Disk. It came out in 2004 but it is still awaiting FDA approval in spite of the fact that it and the M6 ADR have been used with great success in the civilized world.

Congress controls what the FDA does and corporations like medical corporations control congress. You can blame your suffering on some bought and sold pack of thieves in DC.

Our bodies do not belong to the government and the corporations that own it. We should be allowed to have medical treatment that in our judgement we think is best based on the advice or our doctors.

Sorry for the rant but this is the truth.

EAT THE RICH!
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Old 04-26-2011, 10:11 PM
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I"m glad you said rare for fusions as i am one who has been extremely helped by lots of them . I am basically fused or in the process of from c4 thru L2. I am having lumbar pain know, but do to different issues. My thoracic spine was a mess and a few discs were horribly painful . the horrible pain is gone, unfortunately i had a surgeon who accidentally damaged my phrenic nerve so i had to trade in pain for low lung function.,
But i have not been a candidate for ADR do to low bone density.
judy
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2007 ACDF 4-7
2008 hip , knee scope, hip replacement
2009 thoracic T-5 thru T-11fusion
2009 VATS T7-8, posterior only T11-12. removal of thoracic hard wear
2010 lung surgery
2010 T2-L2 kyphosis correction
2010 Kyphoplasty T-3, T-4
2011 Cervical osteotomy ,revision C4-T5
2011 Foot surgery
2011 Revision fusion T7 thru L4/laminectomy
2012 Hammertoe correction left foot
2012 Revision fusion T-12 thru L5
2012 Revision fusion L4-L5
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Old 04-26-2011, 10:50 PM
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Default Prednisone

Worked...got me out of pain but what a nightmare drug with terrible side effects. Really hard to come off of. I wouldn't recommend it to anyone!
__________________
Chemically sensitive disc/Annular tears, DDD, mild bulging, facet arthritus

Dancing accident in 96. tried PT, acupuncture, pilates, pain mgmt. nothing worked. Epidurals, facet blocks, caudal blocks, discogram. Opiates for ten years, oral prednisone, toradol inj. & more.

Two level spinal fusion with BMS, cages, hardware. due to bone density problems from chemotherapy, they had to go in front and back. Surgery Nov. 6, 2010. So far no regrets.
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Old 04-27-2011, 02:09 AM
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Some people get temporary help from fusion others end up far worse. The fact that there is not a safe and effective medication for low bone density is just another indication of how bad our health care system is. Things like vitamin D, boron, calcium, testosterone, and exercise can't be patented but dangerous chemicals can receive a patent.

I bet your MD has you on some poison like Boniva.

Here is the 411 on Boniva and other poisons like it.

Boniva is part of the drug classification known as “bisphosphonates”. The source(hold onto your hats!) is derived from a waste product produced by the phosphate and metal factories.

When they clean the smoke stacks, a “liquor” of deadly fluorides, uranium,heavy toxic metals are obtained. This substance is biohazardous class “A” industrial waste. It dos not get magically converted or cleaned into a safe formulary either people. It REMAINS TOXIC to the very end of production where it reaches the duped consumer.

The same substance is also used for Rodenticide, Herbicide, Industrial Cleaners, and the deadly nerve gas SARIN is made from those ingredients!!

As to cortico steroid; You'd think by now medical "science" would have come up with something better since 1950. They haven't. They do have NSAIDS that kill 1 in 12000

Long-term use of NSAIDs can cause gastric erosions, which can become stomach ulcers and in extreme cases can cause severe haemorrhage resulting in death. The risk of death as a result of use of NSAIDs is 1 in 12,000 for young adults aged 16-45. The risk increases almost twenty-fold for those over 75. Other dangers of NSAIDs are exacerbating asthma and causing kidney damage.[1] Over use of acetaminophen (paracetamol) causes liver damage and is the most common cause of liver failure in the United States, according to a 2009 report from the federal Food and Drug Administration.

LINK
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Old 04-27-2011, 06:02 AM
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i am not on any bisphosphonates. I know they are poison, but all we have . do you have any better ideas?
I am also on corticosteroids for adrenal insufficiency . It is a life or death situation as my body just is not making any cortisol.We do need it to live so please put yourself in some of the situations others are facing and see what you would do.
I am very open to suggestions.
Judy
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2007 ACDF 4-7
2008 hip , knee scope, hip replacement
2009 thoracic T-5 thru T-11fusion
2009 VATS T7-8, posterior only T11-12. removal of thoracic hard wear
2010 lung surgery
2010 T2-L2 kyphosis correction
2010 Kyphoplasty T-3, T-4
2011 Cervical osteotomy ,revision C4-T5
2011 Foot surgery
2011 Revision fusion T7 thru L4/laminectomy
2012 Hammertoe correction left foot
2012 Revision fusion T-12 thru L5
2012 Revision fusion L4-L5
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Old 04-27-2011, 07:28 AM
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Quote:
Originally Posted by jsewell View Post
i am not on any bisphosphonates. I know they are poison, but all we have . do you have any better ideas?
I am also on corticosteroids for adrenal insufficiency . It is a life or death situation as my body just is not making any cortisol.We do need it to live so please put yourself in some of the situations others are facing and see what you would do.
I am very open to suggestions.
Judy
Google orthopedic use mesenchymal stem cells and similar searches.

You may find help here. This MD is doing regenrative stem cell therapy
Regenexx - Stem Cell Treatments for Joint Pain and Injuries

The extract stem cells from your fat or bone marrow and grow them for a few weeks and then they inect them into the disk, bone or tendon that need repair. form what I have read everyone get some benefit and the science is sound.

I hope this helps you get some relief or cure.

Get your vit D levels checked and if you are peri menopausal or post find an enlightened doctor (often and oxymoron) and get your hormones tested and get some testosterone. Testosterone builds bones and reduces pain. Most woman today becasue of the xenoestrogens in the environment are estrogen dominant and lack normal tetosterone levels

MDs lie and say that test can increase the risk of certain cancers but the science on that is weak. The reasons Black woman don't get bone loss is because their hormonal make up is slightly different than White or Asian women. MDs won't tell you that.

If you can do weight training give it a try and take boron and magnesium and vit D with your calcium and also eat leafy green vegtables.

Try a chiropractor but make sure he's reputable.

Here is a free online book on the new orthopedic science. Book on Regenerative Orthopedics | The Regenexx? Procedure

Last edited by ADR seeker; 04-27-2011 at 07:59 AM.
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Old 04-27-2011, 02:50 PM
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Default do you

Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.
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Old 04-27-2011, 03:55 PM
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thanks for the info i will look into it all.
I do , believe it or not have an excellent endocrinologist. when i was doing research on cushings a few years back and still living in georgia, i flew out to so cal to see him. I have been on testosterone for years and my vitamin D levels are at the top of the range. Over the top at one point. I do a lot of hiking in the so cal sun. pain or no pain, breathing well or now not.
As far as my discs they are all taken care of. My lumbar pain is caused by a fracture in L2 and possibly the screws. My doc plans on taking them out and cementing the fracture when he feels i have recovered enough from my broken neck. that one was my biggest fracture and i don't even know how it occured , which is why i need to strengthen my bones. I have been a runner for years and years and stopped after my hip was replaced in 2008. So i have been doing all the right things that i can , just loosing the battle.

Thanks Maria not sure what you mentioned is, but i will check it out.
Any suggestions are always appreciated
judy
__________________










2007 ACDF 4-7
2008 hip , knee scope, hip replacement
2009 thoracic T-5 thru T-11fusion
2009 VATS T7-8, posterior only T11-12. removal of thoracic hard wear
2010 lung surgery
2010 T2-L2 kyphosis correction
2010 Kyphoplasty T-3, T-4
2011 Cervical osteotomy ,revision C4-T5
2011 Foot surgery
2011 Revision fusion T7 thru L4/laminectomy
2012 Hammertoe correction left foot
2012 Revision fusion T-12 thru L5
2012 Revision fusion L4-L5
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Old 04-27-2011, 06:01 PM
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Quote:
Originally Posted by Maria View Post
Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.
I am looking into Regenexx myself. It sounds good but I can't find any double blind studies only testimonials. I have read on other forums of people getting good results.

I have also read about athletes having similar procedures done with good results.

The regenexx procedure is different in that the use something in the patient's blood to grow the stem cells. Because this is not a new substance the FDA rules are iffy. The FDA is trying to call it a medication but Regenexx is calling what they do surgery. I would trust Regenexx before I would trust the FDA but Regennex could be a scam.

As far as I'm concerned the jury is still out. Stem cell therapy is not being treated rigorously because it is something that can't be patented and whether people want to admit or not American medicine is about money first and foremost. For every Dr Oz there are 50 Dr Greeds. The sad fact is bad medicine is more lucrative than good medicine.

Take a look at the current ADR available. These things are tinker toys. I really don't think the best mechanical engineers are designing these things. The one that makes the most sense to me is a Neo Disk. It doen't look as pretty as the M6 but if it functions as well from a motion point of view I would IMO say it is superior because if implanted properly is won't migrate and it's a much simpler procedure. It also, as far as I know contains no metal so there is less chance of toxicity or metal allergy other than the screws. But the screws don't rub against anything so they probably won't shed metal.
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Old 07-22-2011, 01:15 PM
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Default re prednisone

Quote:
Originally Posted by dridobits View Post
Happy to say day three of prednisone working, but there are so many side effects. Very hard to sleep on it. Feeling phantom pain also which is weird. Im took a walk yesterday and did some light house work. House work is my biggest issue but I hope in a week to be better?
my nurse told me not to take it past 6 pm...i have not started mine. i was given pred. two days ago. the relief will only be a temp solution anyway, so why should i bother? as for the Zipsor they gave me to try, it makes me dizzy...there was a time when i could at least lay down and get some relief but now it even hurts when i am lying down.
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female age 45, height 5"6", 145 lbds, non smoker, conservative treatments failed, (7/2007) C4/5/6 peek disc replacements,plate & screws failed fusion,
(9/2008) revision with bone replace plate and screws, (10/2009) C3/4 stand alone peek cage, (12/2010) facet joint injections C3-7, (1/2011) rhizotomy C6/7 failed, Trouble swallowing
most recent mri (7/2011) shows ajacent level issues: right neural foraminal narrowing C2/3, posterior bulge indents thecal sac at C6/7/T1 no mass effect on cord.
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Old 07-22-2011, 05:10 PM
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Hi Anthony and welcome to the forum.

Great that you already had your surgery. The pain you are still feeling is nerve pain which takes a long time to subside. 5 weeks is still pretty early and your fusion may take a little longer to heal than the ADR which takes awhile itself. The surgical pain is expected to subside at around 6 weeks but 6 months isn't unusual for your double procedure. Some, like me, take even longer.

You might want to see a pain management specialist to control this pain and please start a new post to tell us about yourself and your circumstances.

Dale
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Dr. B in Bogen, Germany
Severe nerve damage in left leg, still working on it
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