New Pain after fusion

[dridobits]

Worked...got me out of pain but what a nightmare drug with terrible side effects. Really hard to come off of. I wouldn't recommend it to anyone!

[ADR seeker]

Some people get temporary help from fusion others end up far worse. The fact that there is not a safe and effective medication for low bone density is just another indication of how bad our health care system is. Things like vitamin D, boron, calcium, testosterone, and exercise can't be patented but dangerous chemicals can receive a patent.

I bet your MD has you on some poison like Boniva.

Here is the 411 on Boniva and other poisons like it.

Boniva is part of the drug classification known as “bisphosphonates”. The source(hold onto your hats!) is derived from a waste product produced by the phosphate and metal factories.

When they clean the smoke stacks, a “liquor” of deadly fluorides, uranium,heavy toxic metals are obtained. This substance is biohazardous class “A” industrial waste. It dos not get magically converted or cleaned into a safe formulary either people. It REMAINS TOXIC to the very end of production where it reaches the duped consumer.

The same substance is also used for Rodenticide, Herbicide, Industrial Cleaners, and the deadly nerve gas SARIN is made from those ingredients!!

As to cortico steroid; You'd think by now medical "science" would have come up with something better since 1950. They haven't. They do have NSAIDS that kill 1 in 12000

Long-term use of NSAIDs can cause gastric erosions, which can become stomach ulcers and in extreme cases can cause severe haemorrhage resulting in death. The risk of death as a result of use of NSAIDs is 1 in 12,000 for young adults aged 16-45. The risk increases almost twenty-fold for those over 75. Other dangers of NSAIDs are exacerbating asthma and causing kidney damage.[1] Over use of acetaminophen (paracetamol) causes liver damage and is the most common cause of liver failure in the United States, according to a 2009 report from the federal Food and Drug Administration.

LINK

[jsewell]

i am not on any bisphosphonates. I know they are poison, but all we have . do you have any better ideas?
I am also on corticosteroids for adrenal insufficiency . It is a life or death situation as my body just is not making any cortisol.We do need it to live so please put yourself in some of the situations others are facing and see what you would do.
I am very open to suggestions.
Judy

[ADR seeker]

Originally Posted by jsewell

i am not on any bisphosphonates. I know they are poison, but all we have . do you have any better ideas?
I am also on corticosteroids for adrenal insufficiency . It is a life or death situation as my body just is not making any cortisol.We do need it to live so please put yourself in some of the situations others are facing and see what you would do.
I am very open to suggestions.
Judy

Google orthopedic use mesenchymal stem cells and similar searches.

You may find help here. This MD is doing regenrative stem cell therapy
Regenexx - Stem Cell Treatments for Joint Pain and Injuries

The extract stem cells from your fat or bone marrow and grow them for a few weeks and then they inect them into the disk, bone or tendon that need repair. form what I have read everyone get some benefit and the science is sound.

I hope this helps you get some relief or cure.

Get your vit D levels checked and if you are peri menopausal or post find an enlightened doctor (often and oxymoron) and get your hormones tested and get some testosterone. Testosterone builds bones and reduces pain. Most woman today becasue of the xenoestrogens in the environment are estrogen dominant and lack normal tetosterone levels

MDs lie and say that test can increase the risk of certain cancers but the science on that is weak. The reasons Black woman don't get bone loss is because their hormonal make up is slightly different than White or Asian women. MDs won't tell you that.

If you can do weight training give it a try and take boron and magnesium and vit D with your calcium and also eat leafy green vegtables.

Try a chiropractor but make sure he's reputable.

Here is a free online book on the new orthopedic science. Book on Regenerative Orthopedics | The Regenexx? Procedure

[Maria]

Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.

[jsewell]

thanks for the info i will look into it all.
I do , believe it or not have an excellent endocrinologist. when i was doing research on cushings a few years back and still living in georgia, i flew out to so cal to see him. I have been on testosterone for years and my vitamin D levels are at the top of the range. Over the top at one point. I do a lot of hiking in the so cal sun. pain or no pain, breathing well or now not.
As far as my discs they are all taken care of. My lumbar pain is caused by a fracture in L2 and possibly the screws. My doc plans on taking them out and cementing the fracture when he feels i have recovered enough from my broken neck. that one was my biggest fracture and i don't even know how it occured , which is why i need to strengthen my bones. I have been a runner for years and years and stopped after my hip was replaced in 2008. So i have been doing all the right things that i can , just loosing the battle.

Thanks Maria not sure what you mentioned is, but i will check it out.
Any suggestions are always appreciated
judy

[Maria]

Hey Judy,
I was responding to what ADRseeker posted after checking out the link mentioned for Regenexx so the question was posted to this poster.

I stopped taking my injectable Forteo because it has such a plastic-y smell and I know that may have been stupid but it actually made me feel like vomiting just smelling it. My PCP told me to hold my nose or cover it with something pleasant smelling like Lavender. I still have to see my Rheumatologist and admit non compliance w/treatment and get BMD done. I only hope it has not gone lower.

I have seen what happened to my father with severe osteoporosis and do not want to go there. My mother, brother and father had/have it.


I do think that often the benefit(s) outweigh the risk(s) in medicine and on that premise we choose to proceed w/various treatments/endeavors.

[ADR seeker]

Originally Posted by jsewell

thanks for the info i will look into it all.
I do , believe it or not have an excellent endocrinologist. when i was doing research on cushings a few years back and still living in georgia, i flew out to so cal to see him. I have been on testosterone for years and my vitamin D levels are at the top of the range. Over the top at one point. I do a lot of hiking in the so cal sun. pain or no pain, breathing well or now not.
As far as my discs they are all taken care of. My lumbar pain is caused by a fracture in L2 and possibly the screws. My doc plans on taking them out and cementing the fracture when he feels i have recovered enough from my broken neck. that one was my biggest fracture and i don't even know how it occured , which is why i need to strengthen my bones. I have been a runner for years and years and stopped after my hip was replaced in 2008. So i have been doing all the right things that i can , just loosing the battle.

Thanks Maria not sure what you mentioned is, but i will check it out.
Any suggestions are always appreciated
judy

There are some clinical trials where they are mixing stem cells with BMPs (bone morphogenic proteins) but it is a product being tested for fusions.

It sounds genetic and it also sounds like you have good doctors.

Stem cells will help bone repair.

[ADR seeker]

Originally Posted by Maria

Work for or represent Regenexx or had any area of your body treated in this manner in the facilty mentioned? Would be interesting to here first hand experience if you are indeed an actual patient/recipient.

I am looking into Regenexx myself. It sounds good but I can't find any double blind studies only testimonials. I have read on other forums of people getting good results.

I have also read about athletes having similar procedures done with good results.

The regenexx procedure is different in that the use something in the patient's blood to grow the stem cells. Because this is not a new substance the FDA rules are iffy. The FDA is trying to call it a medication but Regenexx is calling what they do surgery. I would trust Regenexx before I would trust the FDA but Regennex could be a scam.

As far as I'm concerned the jury is still out. Stem cell therapy is not being treated rigorously because it is something that can't be patented and whether people want to admit or not American medicine is about money first and foremost. For every Dr Oz there are 50 Dr Greeds. The sad fact is bad medicine is more lucrative than good medicine.

Take a look at the current ADR available. These things are tinker toys. I really don't think the best mechanical engineers are designing these things. The one that makes the most sense to me is a Neo Disk. It doen't look as pretty as the M6 but if it functions as well from a motion point of view I would IMO say it is superior because if implanted properly is won't migrate and it's a much simpler procedure. It also, as far as I know contains no metal so there is less chance of toxicity or metal allergy other than the screws. But the screws don't rub against anything so they probably won't shed metal.