SCS - Horrible Pain Everything went wrong!

[kajari]

It has been one year since the implant of the spinal cord stimulator when the surgery went horribly wrong. After months of consulting with a neurosurgeon I have decided to let the surgeons remove the spinal cord stimulator. The banding pain around my chest has become a lot worse about 7 on pain scale and the loss of feeling in my abdomen and parts of my back has become wide spread. Everything has become a lot worse. Consulting with my neurosurgeon he things that removing the spinal cord stimulator may alleviate some of this pain and loss of feeling. He will not know how bad the scar tissue and what exactly is going on until he does the surgery. He is also worried about my dura since the last surgeon accidentially cut open the dura which caused me to loose l large amount of cerebral (sp) fluid ultimately causing the surgeon to fill the hole in my dura with a special foam that stopped the leak. My surgeon told me that because there were problems with my dura the risk of problems with this surgery is a lot higher. I do now have any hopes of alleviating the pain after what happened to me with the last surgery in March 2010. I am getting desperate as the pain has become quite unbearable. I will be having the surgery this Friday (April 8th). I will update the list after I am home and can sit long enough to send an update

[dshobbies]

Kajari,

You are indeed living the nightmare that we all feared when undergoing spinal surgery. Though I do hope you someday find out what went so wrong, my much stronger wish is that your pain is alleviated and your sanity is restored to normal. I can't even describe how horrible I feel for your circumstances.

Maybe by next week the sun will shine again. My thoughts are with you -

Dale

[kajari]

Thank you for the nice response. The surgeon did tell me one thing that he thinks the last surgeon did wrong. The surgeon accidentally cut a hole in my dura during the surgery. When he cut the dura they filled it with some type of surgical foam to stop the leak. Two days later the surgeon did an emergency laminectomy from T6 to T10 and at the same time he implanted the permanent SCS leads. The leads were placed directly over where he had cut the dura. The Neurosurgeon I have now thinks that because the last surgeon placed the leads over the tear in the dura that the scare tissue formed from the dura and partially around the leads. He will have to be very careful to remove the scar tissue without damaging the dura during my surgery this Friday. He promised to document any of his findings for me. I really want to know what the last surgeon did to cause so much damage, pain, and loss of feeling.

[Maria]

You found someone honest that is telling you what may happened and if he actually documents findings and tells you about them that's good too. I hope if he does surgery you'll have some much needed relief and soon. I'm sorry to hear how badly things have been going for you. Please keep us updated.

[kajari]

yes I hope it is well documented as well. I have to be in for surgery at 6:00 tomorrow (Friday) morning. Hopefully I will be able to post in a few days that the surgery we well and I have some relief. After what happened to me with my last surgery I find it hard to have any high hopes or expectations for a good outcome. I will go into the surgery with a positive attitude though.

[mmglobal]

Good luck... please keep us posted. I'm hoping to hear about some positive progress in this horrific story.

Mark

[dshobbies]

Good luck tomorrow. We're right there with you

Dale