SCS - Horrible Pain Everything went wrong!

[kajari]

Thank you for the nice response. The surgeon did tell me one thing that he thinks the last surgeon did wrong. The surgeon accidentally cut a hole in my dura during the surgery. When he cut the dura they filled it with some type of surgical foam to stop the leak. Two days later the surgeon did an emergency laminectomy from T6 to T10 and at the same time he implanted the permanent SCS leads. The leads were placed directly over where he had cut the dura. The Neurosurgeon I have now thinks that because the last surgeon placed the leads over the tear in the dura that the scare tissue formed from the dura and partially around the leads. He will have to be very careful to remove the scar tissue without damaging the dura during my surgery this Friday. He promised to document any of his findings for me. I really want to know what the last surgeon did to cause so much damage, pain, and loss of feeling.

[Maria]

You found someone honest that is telling you what may happened and if he actually documents findings and tells you about them that's good too. I hope if he does surgery you'll have some much needed relief and soon. I'm sorry to hear how badly things have been going for you. Please keep us updated.

[kajari]

yes I hope it is well documented as well. I have to be in for surgery at 6:00 tomorrow (Friday) morning. Hopefully I will be able to post in a few days that the surgery we well and I have some relief. After what happened to me with my last surgery I find it hard to have any high hopes or expectations for a good outcome. I will go into the surgery with a positive attitude though.

[mmglobal]

Good luck... please keep us posted. I'm hoping to hear about some positive progress in this horrific story.

Mark

[dshobbies]

Good luck tomorrow. We're right there with you

Dale

[kajari]

It has been a while since I posted but I had the surgery to remove the SCS from my spine and battery from my buttock. I woke from the surgery with the same symptoms. The horrible banding pain around my upper abdomen (around where my diaphram is). This pain never goes away and at times I have a horrible cramping around the area. It feels like someone tightens a hot belt around upper abdomen/lower chest. The pain brings tears to my eyes. The surgeon also had to do a revision laminectomy from T6 thru T10 but the surgical report does not state why. The surgeon states that he had to hollow it out more and "remove some rough areas". He also states he found a strange geletanious substance surrounding the SCS Paddles and had a hard time removing it to get the paddles out. My right leg going paralyzed has become worse and went from two or three times a week to almost every day. My right leg will just give out and I fall to the ground. I walk with a cane but I am unable to catch myself. Yesterday I fell harder than I have yet and when trying to catch myself I felt a horrible burning sensation in my groin area. I now have what appears to be a hurnia....just what I need with all these other problems. This has been such a horrible experience and I am at my wits end with all the surgeries an horrible pain. This has turned into a never ending cycle of pain, pain medications, and even more pain. I was in such high hopes that removing the SCS would remove some of the pain around my chest but those hopes faded so quickly after surgery.

Greg

[dshobbies]

Greg,

I'm so sorry the removal surgery actually worsened your condition. Personally, I'm furious at what happened to you and it's time for other opinions and a good lawyer. This should never have happened. I'm curious as to what your doctor has to say and why, the reason for redoing the lamis isn't in the surgical report.

I do wish you well and hope that someday the pain does subside but I fear it will be at the hands of more surgery.

Dale