SCS - Horrible Pain Everything went wrong!

[kajari]

It has been a while since I posted but I had the surgery to remove the SCS from my spine and battery from my buttock. I woke from the surgery with the same symptoms. The horrible banding pain around my upper abdomen (around where my diaphram is). This pain never goes away and at times I have a horrible cramping around the area. It feels like someone tightens a hot belt around upper abdomen/lower chest. The pain brings tears to my eyes. The surgeon also had to do a revision laminectomy from T6 thru T10 but the surgical report does not state why. The surgeon states that he had to hollow it out more and "remove some rough areas". He also states he found a strange geletanious substance surrounding the SCS Paddles and had a hard time removing it to get the paddles out. My right leg going paralyzed has become worse and went from two or three times a week to almost every day. My right leg will just give out and I fall to the ground. I walk with a cane but I am unable to catch myself. Yesterday I fell harder than I have yet and when trying to catch myself I felt a horrible burning sensation in my groin area. I now have what appears to be a hurnia....just what I need with all these other problems. This has been such a horrible experience and I am at my wits end with all the surgeries an horrible pain. This has turned into a never ending cycle of pain, pain medications, and even more pain. I was in such high hopes that removing the SCS would remove some of the pain around my chest but those hopes faded so quickly after surgery.

Greg

[dshobbies]

Greg,

I'm so sorry the removal surgery actually worsened your condition. Personally, I'm furious at what happened to you and it's time for other opinions and a good lawyer. This should never have happened. I'm curious as to what your doctor has to say and why, the reason for redoing the lamis isn't in the surgical report.

I do wish you well and hope that someday the pain does subside but I fear it will be at the hands of more surgery.

Dale

[kajari]

I find it hard to even think about another surgery right now but when you are in this much pain (radiating in both legs..right worse than left, lower back pain, middle back pain and the pain radiating around my chest) you would do anything to have the pain go away. Just like most sureons, my current surgeon wont say too much as far as implicating the previous surgeon who did this all to me. Everyone is afraid of being caught up in a lawsuit. All I want to know is what happened and what can be done to fix this whole mess. My whole life has been turned upside down and the pain is taking over my life. I just want to get a little relief and be able to concentrate on something other than the pain or how I am going to get from one point to another. Sometimes I think I would be better off paralyzed so I would not feel all of this pain.

Greg

[mmglobal]

Kajari, I'm so sorry to hear that your troubles continue. I seems so odd that they can continue to stonewall you and not say what occurred in the surgery.

While compensation won't improve your life much, I hope you are able to get some... any lawyers interested in taking the case?

Mark

[Maria]

Kajari,
If we're talking about US surgeons not saying anything that seems perfectly normal to me, unfortunately. As you state one doesn't want to say too much that might involve perhaps himself getting into the midst of a lawsuit w/he said she said... sadly.

I know that feeling of just wanting to know what was done/what went wrong. I felt the same way after my failed 2nd spine surgery but then like you I also just wanted relief as the constant horrific pain (no extremities giving out) I wished was mind numbing but it was mind screaming/bending!

I do wish you some relief however it happens and perhaps it's time to talk to an attorney if you've not. Compensation may not be much if any relief however it may be one way to squeeze some answers out of somebody (supoena for the surgical records).

[jsewell]

Kajari,
I am so sad reading your plight. I am not surprised that the surgeon gave you no answers. During a VATS surgery, my right phrenic nerve was damaged (i know only do to my investigating) and i am left with 50 % lung capacity. The surgeon claimed nothing happened, yet in the surgical report it states they had problems with my lung and oxygenation. That was after T7-8 was operated on. Everything fine before that point. This was with DrJohn Regan , who is supposed to be one of the best . He never admitted anything or helped with anything either. I know it was an accident, yet if i had been helped last year, it could have been repaired. Now i am told there is too much scar tissue in there to attempt to free the nerve.

I had the surgery for the relief of some horrible thoracic pain so i feel i have experienced some of what you are going through , just not all at once. I just had lumbar/thoracic surgery last week and am suffering from the horrible nerve/leg/buttock pain at this moment.

I pray you get some relief and this gets figured out, but don';t be surprised if you are the one who has to do it. Not that nerve pain is easily fixed, but i tried in my case. My case was more clear cut to me , but not to the doctors!!!
WE have not talked about pain management. Are you under someone's care? You sure need to be, it really can help. When i was at one of my worst periods pain management was a life saver.
Sorry you find yourself in this position
judy

[Hooch]

Just wanted to say Hi and offer some support, what a fkin disaster of a situation for you.