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iSpine Discuss Advice on annular tear and mri results in the Main forums forums; Thanks for the advice. I am going to keep doing myofascial release and try together an ultrasound Of my abdominals. ...

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Old 05-05-2011, 01:12 PM
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Thanks for the advice. I am going to keep doing myofascial release and try together an ultrasound Of my abdominals. I have had irritable bowl syndrome for months that has slowly diminished a bit since seeing the therapist.

I have triggapoints goin nuts. In psoas , hips ,diaphragm, thighs , neck back hands, shoulders,

I'm very anxious sometimes. Mood swings ,depression, the worst is the feeling in my stomach, the upper back muscles, and lower back muscles , abdominals, especially rectus abdominous , prevent me from sitting, when I try to sit and work I get a big ball of pressure in different areas mainly my psoas I think. And back area. It's friggn cruel to not b able to sit I'm over it after 8 months and I'm 28 . It's not cool if u can't drink alcohol or even soda. I've drank water for months I look fit and strong. I still have strenghth but I buckle to some degree. My muscles were extremely tight and I found tender spots in most of my body when I do the release points. I must admit this is unbelievably hard to stay calm all the time but meditating can help if I'm not too anxious. I think my mental state can't handle the pain without getting other problems like depression. I'm just fed up sometimes trying to keep positive when it just keeps doin random pains

It is totally amazing how much I understand now about my pain . I am in tune with my pain with no pain killers now. I stoped taking endep 10 mg 3 days ago. I hope it was a good idea but they were making me crazy. I am having irrational thoughts which I am a little worried but I would think anyone who lost their passions would be .

I have muscular problems all over and If I use my body repetedly say even using my iPhone is killing my shoulder arms and hands.

Anyway il keep trying , ima try triggapoints with my tennis ball and eliminate the nasty mysterious triggerpoints

Are there more sinister underlying conditions that could be causing my problems? I assume cmp or fibro is up there because no body else is too worried lol It at times feels like I'm dying but I don't show signs of blood. My therapist recommended to have my organs ultrasound . I'm going tommorrow to see a doc again. Atleast this new one listens but has only heard of fibro. I think I have chronic myofascial pain but frequently question fibro. I can't sleep in any position comfortably it's crazy. God knows what I have and I just hope he can shed some light on me cos I have learnt my lesson now to look after my body and hope I can get that second chance. If i end up employing people I will make sure they are comfortable on ergo chairs lol

I need to go back and finish 9 units to get my degree. I wonder if I can do university if I can't sit down but if I don't get better soon I'm going to die trying lol I need that degree

Cheers Magrego

Last edited by Magrego; 05-05-2011 at 01:27 PM.
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Old 05-05-2011, 03:40 PM
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Default re finishing up 9 units

I don't know about where you're at tho here in the states universities have Disabled Student Resources dept.

At the age of 28 when I was injured and then starting my MSN (masters of science in nursing) at around 30 I didn't want to go there as in associating myself w/"disabled" but I ran into some resistance re my not being able to "sit" at a desk for a class or two so I pulled out that stop and went there.

Had the backing of this dept and nursing dept provided a beanbag chair which at the time I could sit in off the side to the front of class and semi recline as i could not sit on my tailbone for anything for years at least not for any amount of time.

In grad statistics class the instructor was really understanding and allowed me to lay across one table. Yeah it was sorta uncomfortable and yeah people would say stuff but I really didn't care as I was going to get that Masters degree and remain employed since I couldn't work as a staff nurse any longer re hours/work/various things. The MSN clinicals were Ok and I didn't put them back to back like most people did rather had 4 hour clinicals 3 x/week and took a bit longer to finish program. Didn't care, finished it, got my Masters, got several jobs and prolonged my career until 2000 w/work that was much easier for me as it involved no lifting only seeing patients/administrative work.

You do what ya gotta do. re the symptoms you have it does sound like might be fibromyalgia then again could be a mix of things. Seeing the right specialist is the best answer. Finding that one or the ones might be like finding a needle in the haystack tho I'm sure over time you will.

Re emotions I think anyone cut down in their prime is going to be thinking some pretty mean stuff. I know I did. Not to mention it took me years to keep from reinjuring myself because I was young when I got injured and I was energetic, worked out, hiked, was very fit and did all the things a young person who loves to be active does!

Being older and needing downtime is much easier. Friends are way more understanding and even seem to have their own stuff that might slow them down as well.

hang in there and try what you're trying. You seem to have a very good grip on everything esp. for your age and what you're going thru.

Last edited by Maria; 05-05-2011 at 03:43 PM.
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Old 05-05-2011, 08:51 PM
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Magrego,
I feel bad as you are so young to be going through a mysterious pain problem. I don't know details about fibro, but i have a lot of endocrinology problems. WHen my spine surgeon suggested i might have fibromyalgia i asked my endocrinologist . My endo said he thinks fibro is just an undiagnosed endocrine problem. I don't want to add confusion to you, but maybe you could find an excellent endocrinologist and see if something is going on. One thing if you are on pain meds for a while it decreases testosterone levels. I have found this happened to me as women have a little testosterone and i had practically none and am replacing it.
WEll it did get to a point with me where everything hurt , all my old injuries from my youth i am 53, was 50 i think at the time. So both my spine surgeon and my endocrinologist sent me to a rheumatologist. THey had already ruled out things like rheumatoid arthritis. But i was diagnosed with something you cannot have as you are way way too young., But it is called polymyalgia rheumatica and is a disease of older people (they said i was way to young to have it ) that causes inflammation in all your muscles. THe treatment was lots of steroids.
Just wanted to explain there are other possibilities and things we have never heard of , unfortunately. So my advice would be to have your endocrinology system checked out.
Let us know how it is all going,
judy
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2007 ACDF 4-7
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Old 07-01-2011, 02:36 PM
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Thanks for the replys I have some news finally the other day.
My si joint MRI revealed sacroiliitis grade 1-2 with small amount of edema and cyctic formation. The findings are consistent with bilateral sacroiliitis .

Wow I was surprised they actually found something there lol. It seems it is in my whole body now so Mabe it has progressed.

I tell you my life is completely changed it's actually quite amaZing how fast the human body can crumble in a matter of days that turn to months then I haunt lived the rest. But god dam Its so annoying I can't sit or be comfortable and that's the start.

Really worst thing about it is I can never be comfortable. I can see why people sometimes turn to drugs but I am trying to resist the temptation to bake my mind and body lol.

Anybody know if I sacroiliitis is a low success rate. I have sorta accepted I am going to be like this for a long time. At the same time I can't handle another minute of this.

I bought some African cichlids and my buds have been harvested so life could be worse

Anyone had any experience wit sacro problems let us know what can be done.
Thanks guys for the advice earlier I do read it just it takes me some real effort to use my iPhone to reply lol

Never thought using a touch screen could ever be painful

Last edited by Magrego; 07-01-2011 at 02:39 PM.
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Old 12-27-2011, 01:51 PM
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well I am 1 years since my first encounter with chronic pain where I felt like I was dying. It looks to be reactive arthritis although I have not been diagnosed yet my specialist said that's what it looks like.

Seems that I had contracted a bacterial infection some years ago which may have been the actual trigger to this disease. I do not have the gene but I guess when someone grabed my neck around the time I had the bacterial infection (I actually contracted food poisoning) I had treatment for the bacterial infection after my neck had been squeezed by someone.

this grabing the neck cause a massive shooting pain from my cervical right into what felt like my rectum or sacroiliac joint possibly. but it was horrible at the time and made my neck stiff for days. I also had a wierd feeling like the world had just fell on top of me. although I never screamed or yelled, I sat there shocked so no one really knew what had happened at work. I just went home sick so the other guy didn't get fired. I just thought I had a neck problem at the time.

I then recovered until I would throw my neck out severely every 3 months or so. This was very livable and I could still work most of the time.

Then one day I had a sever incredible pain in my chest which I thought was a heart attack (dizzy, very sick) as I went to the hospital. I started to struggle to breath and they found heart palpations. They sent me to a bigger hospital and they said I was too young to have a heart attack and sent me home. I had it for about a week then it went away all of a sudden. I went and traveled Europe I had no problems besides knee problems but other than that I had a great time. I think the active traveling kept me into remission as I backpacked for 3 months.


I then needed a knee reconstruction as my knee crunched at cricket year or so later. this may have been due to this disease (not sure). mind you I always had reoccurring neck stiffness (throwing it out) that went away after a while. but started to get worse and worse. I was in remission most of my time which was not bad because I got relief.

then of a total of 3 years I started suffer from flu like pain or some weird sick feeling, I thought it was my friends house or the air. I really did not consider I had anything infectious.

Then my problem started into light to mild headaches which panadols could solve. I also started to get upper back pain and even heavy shoulders, and just general feeling unwell. But this was nothing serious at this stage for me as I just kept living it up.

Then I started to get sick of these neck problems and thought I better go see somebody to fix this problem as I was taking up boxing and cricket, rugby union ect, I loved to play sport and played all my life,

surgeon who told me I had discophytic change and needed to go see a physio. I think I mentioned this earlier but as you can see I was way off track I could have never guessed it was a rare disease that had probably been progressed by disc mobilization technique on my cervical where the guy grabed my neck. I also noticed alcohol made my condition progress further as It created bowel troubles which is associated with reactive arthritis.

After the physio pushed on my neck I have never been the same and I am now on anti inflammatory which make my life a lot better in terms of wide spread constant pain. I still cannot sit but I can do alot more in terms of moving. I also had nexium for stomache ulcers.

I am so much happier I don't need to smoke weed because I found a doctor to help me lol I worked out why weed was the best answer at the time is because it is a anti inflammatory. but I would not advice it unless you have no other option. the anti inflammatory don't help completely but they help. I quit weed so I can find the energy to fight this disease which i have. I started light 5 kg weights, core work, light boxing, swimming.

This has helped build my confidence but at times I am still very scared because I am always in constant pain and cant walk stand or sit very well. I am re enrolled to finish university and pray I will get better or otherwise I am just going to have to deal with the hand I was dealt.

I was still trying to work out why I cannot sit down very long even with medications. (it is better than it was) I was thinking maybe I had prostateitis or some inflammation somewhere that the meds dont work because a lot of practitioners seem to believe I should be able to sit down and the pain is in my head. I am sick of people telling me its in my head even before I got treatment they told me that.


anyway If anyone has prostatitis or reactive arthritis,. my job requires 8 hours of sitting so I need to be as fit as possible for my career. I cannot even sit to have a meal without having to alternate with standing. people look at me like I am so weird they just cant understand why I stand and eat.

some friends get impatient with me and can't handle the not sitting part as socialising seems to be about sitting a lot of the time. I never realised how much we need to sit its actually so amazed at how unhealthy office careers are if you sit all the time but it is required, and no one will employ me if I need to recline back. I just feel so isolated because no body seems to relate with my problems. I am getting stronger but it has just been so long now.

I am just wondering how many people deal with spine pain and dont relate it with some form of auto immune disease? because I didn't realize for over 3 years until it got so bad I haven't worked for over a year.

just wish I had realized before it had been progressed so far that now it is in nearly every joint and stomache ect. So hopefully this may help some person to find the correct specialist earlier. because this disease can be very mild or very severe depending. also symptoms vary greatly so make sure you research or see a doctor before jumping to conclusions like myself Its hard not to when you are trying to find what is making you sick.

good luck to anyone suffering from any pain or sickness and to make sure you keep living every day as happy as possible.
I try to trick myself by saying pain and suffering are 2 different things. you can have pain and suffer, or you can just have pain. to be honest your just going to suffer less if your happier and do your best to forget about it. its the only solution if you cannot cure or fix something I believe

peace and take care
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Old 12-27-2011, 11:31 PM
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Doctors have a lot of fancy words mostly Latin which is a dead language. I think we know more about the surface of the moon that they structure and function of the spine. Doctors are not all that well informed nor is it in the best financial interest to be informed. They make more money when they fail. Crazy huh?

I have had various bouts of PT and it either made me worse or did nothing. The only thing that bought me time was chiropractic care and now that is not working.

Try GENTLE traction and chiropractic care. Get one of those Sleep Number beds.

You may need to have an MRI done while you are standing of seated.
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Old 01-04-2012, 01:51 PM
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Well I guess it is crazy but I know why it happens capitalist system with people wanting to make money. Even if they don't know what is wrong with you, they will pretend to know. In the process they may damage people and often do. It was amazing how I actually dreamed my spine was in a jar after the physio pushed on my spine.

I use to weigh 86kg now I way 56kg within 6 months. my muscle has disappeared and I look like that guy of silver chair. daniel johns he had reactive arthritis.

I don't think anything will show in mri for a while because my body is attacking itself. it takes time to damage and show in mri I think. well thats what the specialist told me. I just hope it goes away before it damages me permanently. I think the pain I have is inflammation and joint pain throughout body hence why I lost so much weight. my immune system or the medications pretty much ate my muscle in 4 months.

I find it hard to eat cos of the medications but even when I eat i am still losing weight. my thighs are half the size and people know i am sick just by looking at me now. I look like a junkie compared to what i use to be although I just look skinny to someone who never met me. auto immune disease is so hard to diagnose I have to wait. I am still not diagnosed but I am confident I have reactive arthritis otherwise I would have thought I was dying slowly.

has anyone experienced Reactive arthritis. see I don't have a lot of the classic symptoms such as eye inflammation or swollen feet. just severe pain with little swelling.
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Old 01-09-2012, 12:31 AM
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Default yes, the matress

Quote:
Originally Posted by ADR seeker View Post
Doctors have a lot of fancy words mostly Latin which is a dead language. I think we know more about the surface of the moon that they structure and function of the spine. Doctors are not all that well informed nor is it in the best financial interest to be informed. They make more money when they fail. Crazy huh?

I have had various bouts of PT and it either made me worse or did nothing. The only thing that bought me time was chiropractic care and now that is not working.

Try GENTLE traction and chiropractic care. Get one of those Sleep Number beds.

You may need to have an MRI done while you are standing of seated.
i love my temperpedic. have heard good things about the number bed too.
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female age 45, height 5"6", 145 lbds, non smoker, conservative treatments failed, (7/2007) C4/5/6 peek disc replacements,plate & screws failed fusion,
(9/2008) revision with bone replace plate and screws, (10/2009) C3/4 stand alone peek cage, (12/2010) facet joint injections C3-7, (1/2011) rhizotomy C6/7 failed, Trouble swallowing
most recent mri (7/2011) shows ajacent level issues: right neural foraminal narrowing C2/3, posterior bulge indents thecal sac at C6/7/T1 no mass effect on cord.
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