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iSpine Discuss My 3 mo X ray - Discs tilted all over the place in the Main forums forums; Well, Mark called yesterday to touch base. Apparently he has been overwhelmed with his own medical issues as of late ...

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Old 07-16-2009, 01:56 AM
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Well, Mark called yesterday to touch base. Apparently he has been overwhelmed with his own medical issues as of late which is why it's taken him a while to get back to me. He emailed Dr. B directly and he got a response! Dr. B says he is seeing Dr. Guyer tommorrow in a conference in Vienna at which time he will discuss my case with him. This is big and I can't imagine Dr. Guyer not taking me on if it's a face to face personal handoff! So this is good news after all. I still never heard back from dr b's team despite 2 emails, so it shows what how it pays to have mark on your team. I likely wouldn't have ever gotten the chance at such a discounted surgery with dr Regan if it wasn't for mark either. I may still need that option in the future.

My pain is really quite bothersome and keeps me miserable much of the time. It's like it is affecting my whole nerve system deep down. I feel like i can sense that the culprtit is the C6/7 not the higher up levels. I want this ADR out, as long as this ADR removal and fusion has a good track record, I will do it rather than live like this for 5 months on a wait and see. Dr bitan in NY talked about it as a no risk no worry slam dunk procedure, but mark and even dr b seemed not quite that assured. Dr b did say fusion is a generally safe procedure but he just pointed out the fact that anything can happen.

Ibuprofen and alleve don't do much for me right now. Pain killers do though.
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2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success.

9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op.

9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.
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Old 07-16-2009, 02:16 AM
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Steve, good news that Mark was able to save the day there. I will be anxious to hear what happens after their "conference" about you!! How cool is that? I pray you get this removed soon so you can get on with the job of living your life. God bless.
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bicycle accident 6/01: 2 compression fractures @ T12-L1; vertibroplasty; 4/06: right hip labral tear & arthroscopic repair; 4/07: lumbar prodiscs @ 3 levels, L3-6 by Dr. Bertagnoli; 7/02/08: ALIF L6-S1; 7/30/08: reopened to remove bone cement, leaked onto S1 nerve root; 8/08: pulmonary embolism, double pneumonia, collapsed left lung, pleurisy, pleural effusion; ALIF fusion complete; 3/10/09: SI Joint Fusion by Dr. Stark; Jury still out.
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Old 07-18-2009, 07:26 AM
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Katie , cindylou, thx for your interest & well wishes.It gives me more motivation to post updates : )
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2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success.

9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op.

9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.
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Old 07-19-2009, 10:29 PM
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Default steve55?

Do you wish you chose a diffrent adr then the Prodisc Nova ?

Anyway I hope the fusion gives your neck the extra stability under the 2 ADRs

Since I can only get a 1 level AdR here in Delaware I think my doctor is going to do a prestige at c4-5 and a fusion under it at C5-6.

If I had the money I would go to Germany and get the new M6 disc at both levels...Maybe my mom will take me over there...Idk

best of luck...keep us updated...
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C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.

C5-6: Disc desiccation with mild height loss.Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis- Severe neuroforaminal stenosis bilaterally, right greater than left.
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Old 07-27-2009, 02:34 AM
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Default Finally!!

Just got word from Dr Fenk Meyer as follows:

Quote:

Dr. Bertagnoli did communicate to Dr. Guyer and Dr. Ziglar – they are more than willing to have you in their unit at Texas Back Institute for the revision/fusion of your c67.

More so: Dr. Bertagnoli would like to and is welcome to be present in this surgery.

And as your pain did not come close to zero (in a spontaneous fusion this would have cut the need to re-operate), we recommend this to be done timely.

And I will support from over here with any medical issue open. Wishing you best success!
So, as Mark said, sometimes it takes an act of congress, and Dr Bertagnoli is the congress. LOL

I cant say enough about Dr Bertagnoli's concern in my case. Not to mention that not too many people get a free 45 minute follow up consult at the airport with the greatest surgeon in the world. And the fact he wants to be at my surgery is awesome too. Though, I wonder if he is just darn curious to see the disc for himself and see why it may have subsided? Im told Im the first case of cervical subsidence he has had. It probably also gives TBI more experience with ADR removal perhaps? I dont know, I would imagine TBI has done quite a few of those. Dr B seems to be traveling to TBI quite alot anyways, so I guess he figured why not since he goes there so often.

Either way, it means alot to me what he is doing for me and that counts for something. NOw I just want to get a MRI, a new X ray, and get Dr Guyer's opinion as to whether I should fuse now or hold off and wait and see just a little longer. I dont know what to do, I have improved in nerve pain but developed new pain in different areas along the way. I dont know if thats good or bad. I imagine a MRI and new X ray will really make the decison far easier for the docs and myself.
__________________
2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success.

9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op.

9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.

Last edited by steve55; 07-27-2009 at 03:09 AM.
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Old 07-27-2009, 05:17 PM
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Steve55, you are getting closer and closer to your goal. Way to advocate for yourself. Hang in there.
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bicycle accident 6/01: 2 compression fractures @ T12-L1; vertibroplasty; 4/06: right hip labral tear & arthroscopic repair; 4/07: lumbar prodiscs @ 3 levels, L3-6 by Dr. Bertagnoli; 7/02/08: ALIF L6-S1; 7/30/08: reopened to remove bone cement, leaked onto S1 nerve root; 8/08: pulmonary embolism, double pneumonia, collapsed left lung, pleurisy, pleural effusion; ALIF fusion complete; 3/10/09: SI Joint Fusion by Dr. Stark; Jury still out.
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Old 07-27-2009, 06:02 PM
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Steve,

After your new set of films, If TBI agrees on a quick resolution as opposed to waiting, you'll have an even clearer idea of what needs to be done.

Without any negative context, sometimes when doctors of varying opinions consult together, they come to a single consensus.

Regardless, glad it's finally coming together. Maybe, perhaps... your long journey may finally see the light at the end of the tunnel. One can only hope.

My best to you, Dale
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3 level Prodisc adr S1-L3, Oct 12, 2005
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Severe nerve damage in left leg, still working on it
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