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My 3 mo X ray - Discs tilted all over the place
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| iSpine Discuss My 3 mo X ray - Discs tilted all over the place in the Main forums forums; Steve: I've been following what has become your saga and am so sorry you have been put through the ... |
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08-05-2009, 02:21 AM
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Steve:
I've been following what has become your saga and am so sorry you have been put through the mill. Just want you to know that Dr. Regan did my surgery and I know you will be in good hands. So, now that that's settled, hopefully you can focus on finally feeling better. 
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08-05-2009, 02:58 AM
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Thank you Steve for sharing your continued story. It really helps me and others.
I do feel you are on the right track with your concern about local follow up care. I myself have no problem getting follow up imaging studies ordered as my GP does is all for me. When I need xray or MRI, he writes order (and I pay, lol). But in a more complex case like yours its obviously more then just the studies but getting looked after without having to deal with email, long distance etc. The *only* reason I feel comfortable with Germany is that I grew up there as a kid and speak the language. Also have family there. The only thing I still have to contend with is the stressful travel there, especially if there were problems.
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Nov 07: STALIF Fusion L5/S1 ACTIV-L ADR L4/L5 Nov 09: Prodisc-C ADR 2 level C 4/5/6
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08-08-2009, 12:51 AM
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Oh my god! Ouuuuuch~!!!! HELLO PAIN!
The last 2-3 days have been unbelievably painful. Though this recent pain about started about 10 days ago. Thank god for pain killers or it would be pure hell. The right side of my back (around the shoulder blade area to the edges of my back) and my right shoulder are incredibly painful. I get these throbbing pumping pulsations of pain. Every little movement is excrutiatingly painful. Just moving in bed or getting up out of bed is severely painful. Pain pills are the only thing that saves me. I thought I might be able to wait this thing out and I even had some promising days a few weeks ago. BUt this is unbelievable. I guess My ADR is still moving. It will be interesting to see the x rays look. This is so bad, it is convincing me I need to have the surgery. I just pray that its not any of the other discs levels causing the pain. So far, it feels like Im only sore at the C6/7 level and the pain seems t extend from that location.
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2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success. 9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op. 9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.
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08-08-2009, 02:29 PM
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Oh Steve, I am so sorry, and can certainly empathize with your pain (as can most here)
Is it (pain) worse than before surgery? Any news on Dr. Regan? Your composure throughout this whole nightmare is amazing. I would not be so generous nor forgiving in your place. You deserve better and I hope this comes to an end very soon.
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DDD Herniated discs C4/5 & 5/6, L3/4, L4/5, L5/S1 Severe compression of spinal cord in two levels All conventional therapy exhausted, including spinal injections, PT, massage, etc. In appeal with Gov't Insurance for Out-of-country coverage for ADR hybrid surgery of above discs. Recently discovered that I am severely allergic to all common metals used in surgical hardware except for Titanium.
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08-09-2009, 10:10 PM
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Reply
Well, i'm afraid it is almost as bad now compared to presurgury, it's even more disabling. But it's only my right half of my back, the left side is perfectly fine. This type of pain feels more muscular/skeletal type of pain rather than nerve pain. I guess comparing the two, this type pain is preferable to nerve pain as I can handle it better, but both are disabling. I hope this clears up once the ADR is removed.
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2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success. 9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op. 9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4.
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08-10-2009, 12:49 AM
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Steve,
Have you definitely decided on Dr. Regan? When do you find out your surgical date? Can only hope it's soon! You're suffering so  Good luck, Dale
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3 level Prodisc adr S1-L3, Oct 12, 2005 Dr. B in Bogen, Germany Severe nerve damage in left leg, still working on it
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08-10-2009, 09:41 AM
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Update
Wow, things have only gotten worse. Just when I said Im not getting nerve pain, I now sense that I do. I have weird pain sensations I never felt before. Its such a deep, deep, deep penetrating type of pain going through my upper back, shoulders, and both arms now. The tiniest body movements give off horrible pain.WHen I get up out of bed or a chair, I get incredible excrutiating throbbing pain(pain level 9) as if my nerves are so sensitive, that each pump of blood causes pain. I personally feel that the disc must be grating into the bone or a nerve. This is a new ball game now.
Problem is, Dr Regan doesnt get back till next Monday. The Hydrocordone/ultracet/ibuprofem combo only reduces the pain by about 70% and for only 5 hours at a time. Im going to try to get in again today to the local orthopedic surgeon who gave me my x ray prescriptions. I wonder, can he give me something to stop this incredibly sensitive nerve pain? And if so, is it a good idea to wait for Dr Regan? And then who knows how long it will be till he can get me in. As bad as I am feeling, Im afraid I may have no choice but to have a local surgeon do it here. I dont know any surgeons here in Dallas who have ADR removal experience, other than TBI and Peloza who both wont see me.
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2/26/09 - c4-c7 3 level ADR Prodisc Nova with Dr Bertagnoli. 100% success. 9/22/09 -Dr B opened me up to find a staph infection was eating my vertebrae causing ADR subsidence. Had to remove all 3 ADR's and convert to 3 level fusion. Mostly pain free 2 weeks post op. 9/20/10 - I think I jinxed myself. As soon as I told dr b and dr Sullivan I was doing well (on 6/1/10) I tanked and have experienced the return of pain. My neuro says the new pain is at t4. Last edited by steve55; 08-10-2009 at 09:55 AM.
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